Uncertainty in consultations about genetic testing for cancer: an explorative observational study
| Autor: | Anne M. Stiggelbout, Cora M. Aalfs, Niki M. Medendorp, Ellen M. A. Smets, Laxsini Murugesu, Marij A. Hillen |
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| Přispěvatelé: | APH - Personalized Medicine, APH - Quality of Care, Graduate School, CCA - Cancer Treatment and Quality of Life, Medical Psychology, Public and occupational health, Human Genetics |
| Rok vydání: | 2018 |
| Předmět: |
0301 basic medicine
Adult Male Adolescent Genetic counseling Applied psychology Genetic Counseling 030105 genetics & heredity 03 medical and health sciences Young Adult 0302 clinical medicine Cancer genetic counseling Neoplasms medicine Humans Lack of knowledge 030212 general & internal medicine Genetic Testing Referral and Consultation Qualitative Research Genetic testing Aged medicine.diagnostic_test Communication Uncertainty General Medicine Middle Aged Counselors Patient Satisfaction Tape Recording Observational study Female Psychology Counselee Counselor Coding (social sciences) |
| Zdroj: | Patient Education and Counseling, 101(12), 2083-2089 Patient Education and Counseling Patient education and counseling, 101(12), 2083-2089. Elsevier Ireland Ltd |
| ISSN: | 1873-5134 0738-3991 |
| Popis: | Objective Persons seeking cancer genetic counseling mainly aim to obtain information and certainty about their medical situation. However, the information that counselees receive often involves many uncertainties. To develop strategies to enable optimal communication about uncertainties, the spectrum of uncertainty expressed within cancer genetic counseling needs to be established. This study aimed to gain insight into the uncertainties verbally expressed by counselors and counselees. Methods Twenty-five consultations were audiotaped, transcribed and qualitatively analyzed. A coding scheme identifying all uncertainties was developed parallel to the coding of the transcripts. Results Several uncertainties were identified varying in their source (i.e. the cause of uncertainty) and the issues involved (i.e. the topic to which uncertainty pertained). The main sources of uncertainty were the unpredictability of the future and a lack of knowledge. Counselees also expressed uncertainty related to the amount and complexity of the information. Counselors expressed uncertainties mainly related to scientific issues, whereas counselees’ uncertainty mainly related to personal and practical issues. Conclusion A wide range of uncertainties was expressed by both groups. Counselors differ from counselees in the degree and types of uncertainty they express. Practice implications Counselors should address scientific uncertainties during genetic counseling to increase awareness and understanding in counselees. |
| Databáze: | OpenAIRE |
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