Perception of Genetic Testing for Deafness and Factors Associated with Interest in Genetic Testing Among Deaf People in a Selected Population in Sub-Saharan Africa
Autor: | Bidemi O Yusuf, A. A. Jinadu, M. T. Sunmonu, A. F. Ashanke, J. Taye Lasisi, O. Akeem Lasisi, Babatunde Adedokun |
---|---|
Rok vydání: | 2014 |
Předmět: |
Adult
Male Parents medicine.medical_specialty Genetic counseling Population Nigeria Context (language use) Genetic Counseling Demographic profile Deafness Developmental psychology otorhinolaryngologic diseases medicine Humans Genetic Testing education Genetics (clinical) Genetic testing education.field_of_study Government medicine.diagnostic_test business.industry Public health Awareness Patient Acceptance of Health Care Persons With Hearing Impairments Vocational education Female business Attitude to Health Clinical psychology |
Zdroj: | Journal of genetic counseling. 24(6) |
ISSN: | 1573-3599 |
Popis: | Understanding the perceptions of genetic testing by members of the deaf community may help in planning deafness genetics research, especially so in the context of strong adherence to cultural values as found among native Africans. Among Yorubas in Nigeria, deafness is perceived to be caused by some offensive actions of the mother during pregnancy, spiritual attack, and childhood infections. We studied attitudes towards, and acceptance of genetic testing by the deaf community in Nigeria. Structured questionnaires were administered to individuals sampled from the Vocational Training Centre for the Deaf, the religious Community, and government schools, among others. The main survey items elicited information about the community in which the deaf people participate, their awareness of genetic testing, whether or not they view genetic testing as acceptable, and their understanding of the purpose of genetic testing. There were 150 deaf participants (61.3 % males, 38.7 % females) with mean age of 26.7 years ±9.8. A majority of survey respondents indicated they relate only with other members of the deaf community (78 %) and reported believing genetic testing does more good than harm (79.3 %); 57 % expressed interest in genetic testing. Interest in genetic testing for deafness or in genetic testing in pregnancy was not related to whether respondents relate primarily to the deaf or to the hearing community. However, a significantly higher number of male respondents and respondents with low education reported interest in genetic testing. |
Databáze: | OpenAIRE |
Externí odkaz: |