Quality of Life in Parents of Children With Biliary Atresia
| Autor: | Lyan H Rodijk, Jan B F Hulscher, Ruben H J de Kleine, Janneke L M Bruggink, Henkjan J. Verkade, Eke M. W. Schins, Marieke J. Witvliet, Behrooz Z. Alizadeh |
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| Přispěvatelé: | Groningen Institute for Gastro Intestinal Genetics and Immunology (3GI), Life Course Epidemiology (LCE), Lifestyle Medicine (LM), Center for Liver, Digestive and Metabolic Diseases (CLDM), Real World Studies in PharmacoEpidemiology, -Genetics, -Economics and -Therapy (PEGET) |
| Rok vydání: | 2020 |
| Předmět: |
IMPACT
media_common.quotation_subject Population PERCEIVED STRESS Disease DISEASE 03 medical and health sciences DISTRESS 0302 clinical medicine parental wellbeing Quality of life Biliary atresia 030225 pediatrics SUPPORT ANXIETY Medicine Personality education media_common education.field_of_study liver transplantation business.industry Gastroenterology LIVER-TRANSPLANTATION medicine.disease WHOQOL RECIPIENTS Distress Pediatrics Perinatology and Child Health disease impact Anxiety 030211 gastroenterology & hepatology CAREGIVERS Worry medicine.symptom liver disease business Clinical psychology |
| Zdroj: | Journal of Pediatric Gastroenterology and Nutrition, 71(5), 641-646. Lippincott Williams and Wilkins |
| ISSN: | 1536-4801 0277-2116 |
| DOI: | 10.1097/mpg.0000000000002858 |
| Popis: | OBJECTIVES: The aim of the study was to determine quality of life (QoL), stress, and anxiety levels in parents of children with biliary atresia (BA), and to assess factors associated with parental QoL. METHODS: Parents of children (6-16 years) with BA were included in this cross-sectional study. We used validated questionnaires to assess parental QoL, stress, and anxiety levels. We compared the results with reference data from the general population and determined associated factors using generalized linear mixed model analysis. Results are given as mean ± SD or median [min-max]. RESULTS: We included 61 parents of 39 children (aged 11 ± 3 years). Thirty-one children (79%) had undergone a liver transplantation (LTx). Parents reported reduced family activities (88 [8-100] vs 95 [30-100], P = 0.002) and more emotional worry (83 [17-100] vs 92 [95-100], P |
| Databáze: | OpenAIRE |
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