Impact of a family-centred early intervention programme in South India on caregivers of children with developmental delays

Autor: Janna MacLachlan, Sankara Raman Srinivasan, Aravind Bharathwaj, Natalie Boychuk, Rahim Moineddin, Sathiya Mariappan, Zoé Campbell, Dinesh Krishna, Cathy Cameron, Sankar Sahayaraj Muthukaruppan, Ramasubramanian Ponnusamy, Bala Murugan Poomariappan, Stephanie A. Nixon, Marie Brien
Rok vydání: 2020
Předmět:
Zdroj: Disability and rehabilitation. 44(11)
ISSN: 1464-5165
Popis: This study evaluated the impact on caregiver strain and family empowerment among caregivers of children with disabilities who received training and education as part of a family-centred community-based early intervention programme in South India.This prospective open cohort longitudinal study compared change from baseline to two years post-intervention among caregivers of the first cohort of children who were enrolled in the programme. Paired t-tests determined effect on the Modified Caregiver Strain Index (MCSI) and Family Empowerment Scale (FES), andOf the 308 caregivers (91% women), 44% provided care to children with cerebral palsy and 56% to children with other developmental delays. The mean age of the children at baseline was 3.3 (±1.5 years). The overall mean change from baseline in the FES was 4.1 (95% CI: 3.3, 4.9;A family-centred early intervention programme that provides training and education to caregivers of children with developmental delays demonstrated positive change in caregiver strain and family empowerment.Implications for RehabilitationThe well-being of a child is influenced by the well-being of their caregiver.Improving caregiver well-being can help improve care and support for children with developmental delays.A family-centred early intervention therapy programme that includes training and education to caregivers can reduce strain and improve family empowerment.
Databáze: OpenAIRE