Family quality of life among families of children with atopic dermatitis
| Autor: | Youngmee Ahn, Seonyeong Hwang, Dae Hyun Lim, Hae Ji Jang, Min Sohn, Jeong Hee Kim |
|---|---|
| Rok vydání: | 2016 |
| Předmět: |
Quality of life
medicine.medical_specialty business.industry Dermatology Atopic dermatitis medicine.disease_cause medicine.disease humanities body regions 030207 dermatology & venereal diseases 03 medical and health sciences 0302 clinical medicine Dermatitis aopic 030228 respiratory system Emotional distress medicine Immunology and Allergy Psychological stress Original Article business Stress psychological Clinical psychology |
| Zdroj: | Asia Pacific Allergy |
| ISSN: | 2233-8276 |
| DOI: | 10.5415/apallergy.2016.6.4.213 |
| Popis: | Background Atopic dermatitis (AD) may cause emotional distress and impairs the quality of life (QoL) in children and their families. Objective We examined family QoL of children with AD and explored associated factors such as disease severity and psychosocial factors among parents of children with AD. Methods Study participants were 78 children (1 month to 16 years old) diagnosed with AD and their parents visiting an outpatient clinic of the Department of Pediatrics in Inha University Hospital. Data were collected using structured questionnaires and medical record review. Parents completed the Dermatitis Family Impact questionnaire (DFI), the Positive Affect and Negative Affect Schedule, the Satisfaction with Life Scale, and the Korean Parenting Stress Index. For children aged below 6-year-old, parents were asked to complete the Infants' Dermatologic Quality of Life. SCOring Atopic Dermatitis (SCORAD), Children's Dermatology Life Quality Index, and the Pediatric Quality of Life Inventory version 4.0 Generic Core Scale were also completed. Results The mean age of parents and children were 37.4 ± 5.3 years and 65.1 ± 45.7 months, respectively. Among them, 87.2% of parents were mothers and 60.3% of children were boys. The mean score of DFI was 11.2 ± 6.0. The mean SCORAD score was 28.3 ± 16.1. Family who experienced strong negative emotionality had a 3.8 times higher probability of experiencing a lower QoL than parents who did not (odds ratio [OR], 3.82; p = 0.041). Family of children with higher severity of AD had a 6.6 times (OR, 6.55; p = 0.018) higher probability of experiencing a low family QoL than their less-severe counterparts. Families of girls with AD had a lower QoL (OR, 8.40; p = 0.003) than families of boys. Conclusion Family QoL among parents of children with AD was low and associated with parent’s psychosocial characteristics as well as disease severity of the children. Considering parental involvement in AD management for children, emotional support for parents can be helpful in long journey of disease management. |
| Databáze: | OpenAIRE |
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