Co-designing strategies to support patient partners during a scoping review and reflections on the process: a commentary
| Autor: | Jananee Rasiah, Karen Moffat, Tamara L. McCarron, Tracy Wasylak, Maria J. Santana, Fiona Clement |
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| Jazyk: | angličtina |
| Rok vydání: | 2021 |
| Předmět: |
Capacity development
Medical education Scoping review Medicine (General) Health (social science) Process (engineering) 030503 health policy & services Patient engagement Successful completion 03 medical and health sciences Co-production 0302 clinical medicine R5-920 Patient and public involvement Medicine public health General Health Professions Commentary Medicine 030212 general & internal medicine 0305 other medical science Psychology |
| Zdroj: | Research Involvement and Engagement, Vol 7, Iss 1, Pp 1-8 (2021) Research Involvement and Engagement |
| ISSN: | 2056-7529 |
| Popis: | Patient partners can be described as individuals who assume roles as active members on research teams, indicative of individuals with greater involvement, increased sharing of power, and increased responsibility than traditionally described by patient participants who are primarily studied. A gap still remains in the understanding of how to engage patients. The objective of this commentary is to describe the involvement of four patient partners who worked with researchers during a scoping review.We describe approaches to meaningfully engage patient partners in conducting a scoping review. Patient partners were recruited through existing patient networks. Capacity development in the form of the training was provided to these four patient partners. Engagement strategies were co-designed with them to address potential barriers of involvement and acquiring the necessary skills for the successful completion of this scoping review.Involving patients partners early in the project established the foundational relationship so patient partners could contribute to their fullest. We witnessed the success of working alongside patient partners as members of the research team with a clear and mutually agreed upon purpose of the engagement in health research activities and how this seemed to contribute to an effective and rewarding experience for both researcher and patient partner.Patients have taken on roles as members of research teams, often involved in a wide range of activities, such as members of advisory committees. Despite these important new roles for patients, broadly, researchers are still challenged with identifying opportunities of benefit to all involved. We describe the involvement of four patient partners who worked with researchers to complete a scoping review. We detail the approaches used to support the project and the benefits and challenges we experienced while involving patients in this review. Co-designing engagement approaches assisted in gaining the support and buy-in necessary from patient partners for the successful completion of this scoping review. Involving patients partners early in the project established the foundational relationship for patient partners to contribute to their fullest. We witnessed the success of working alongside patient partners as members of the research team with a clear and mutually agreed upon purpose of the engagement in health research activities and how this seemed to contribute to an effective and rewarding experience for both researchers and patient partners. |
| Databáze: | OpenAIRE |
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