Are you better? A multi-centre study of patient-defined recovery from Complex Regional Pain Syndrome

Autor: Tanja Schlereth, David Shulman, Lone Knudsen, Alison Llewellyn, R G S M Perez, L Davies, Ilona Thomassen, Florian Brunner, Richard C Haigh, Francois Gobeil, Johan Marinus, Andrzej Zyluk, Robyn Connett, P Moskovitz, Paul D. White, R N Harden, Candy McCabe, C Sontheim, Andreas Goebel, H Small, Frank Birklein, Christian Maihöfner, Yvette Hibberd
Přispěvatelé: VU University medical center, University of Zurich, Llewellyn, A
Jazyk: angličtina
Rok vydání: 2018
Předmět:
Adult
Male
medicine.medical_specialty
Activities of daily living
Adolescent
Delphi Technique
medicine.medical_treatment
MEDLINE
Psychological intervention
Delphi method
610 Medicine & health
03 medical and health sciences
Young Adult
0302 clinical medicine
030202 anesthesiology
Activities of Daily Living
medicine
Humans
Patient Reported Outcome Measures
Young adult
Range of Motion
Articular
Qualitative Research
Aged
Pain Measurement
Aged
80 and over
Analgesics
Rehabilitation
business.industry
Extremities
Recovery of Function
Middle Aged
medicine.disease
Europe
Complex regional pain syndrome
Anesthesiology and Pain Medicine
Physical therapy
10046 Balgrist University Hospital
Swiss Spinal Cord Injury Center
Female
2703 Anesthesiology and Pain Medicine
business
030217 neurology & neurosurgery
Complex Regional Pain Syndromes
Qualitative research
Zdroj: Llewellyn, A, McCabe, CS, Hibberd, Y, White, P, Davies, L, Marinus, J, Perez, RGSM, Thomassen, I, Brunner, F, Sontheim, C, Birklein, F, Schlereth, T, Goebel, A, Haigh, R, Connett, R, Maihöfner, C, Knudsen, L, Harden, RN, Zyluk, A, Schulman, D, Small, H, Gobeil, F & Moskovitz, P 2018, ' Are you better? A multi-centre study of patient-defined recovery from Complex Regional Pain Syndrome ', European Journal of Pain, vol. 22, pp. 551-564 . https://doi.org/10.1002/ejp.1138
EUROPEAN JOURNAL OF PAIN
European Journal of Pain (United Kingdom), 22(3), 551-564. Wiley-Blackwell
Llewellyn, A, McCabe, C S, Hibberd, Y, White, P, Davies, L, Marinus, J, Perez, R G S M, Thomassen, I, Brunner, F, Sontheim, C, Birklein, F, Schlereth, T, Goebel, A, Haigh, R, Connett, R, Maihöfner, C, Knudsen, L, Harden, R N, Zyluk, A, Shulman, D, Small, H, Gobeil, F & Moskovitz, P 2018, ' Are you better? A multi-centre study of patient-defined recovery from Complex Regional Pain Syndrome ', European Journal of Pain (United Kingdom), vol. 22, no. 3, pp. 551-564 . https://doi.org/10.1002/ejp.1138
ISSN: 1090-3801
DOI: 10.1002/ejp.1138
Popis: © 2017 European Pain Federation - EFIC® Background: Complex Regional Pain Syndrome (CRPS) symptoms can significantly differ between patients, fluctuate over time, disappear or persist. This leads to problems in defining recovery and in evaluating the efficacy of therapeutic interventions. Objectives: To define recovery from the patients’ perspective and better understand their priorities for treatment approaches. Methods: Establishing an international consortium, we used a 2-Round Delphi-based study in eight countries across Europe and North America. Participants ≥18years who met, or had met, Budapest clinical criteria were included. Round 1 participants completed the statement: ‘I would/do consider myself recovered from CRPS if/because…’ alongside demographic and health questionnaires. Data were thematically organised and represented as 62 statements, from which participants identified and ranked their recovery priorities in Round 2. Results: Round 1 (N=347, 80% female, 91% non-recovered) dominant ICF themes were: activities of daily living; bodily functions; external factors; participation and personal factors. The top five priority statements in Round 2 (N=252) were: no longer having (1) CRPS-related pain, (2) generalised pain and discomfort, (3) restricted range of movement, (4) need for medication, (5) stiffness in the affected limb. With very few exceptions, priorities were consistent, irrespective of patient demographics/geography. Symptoms affecting daily activities were among those most frequently reported. Conclusions: Our data showed a small number of themes are of highest importance to CRPS patients’ definition of recovery. Patients want their pain, movement restriction and reliance on medication to be addressed, above all other factors. These factors should therefore be foremost concerns for future treatment and rehabilitation programmes. Significance: Those with longstanding CRPS may no longer meet diagnostic criteria but still be symptomatic. Defining recovery is therefore problematic in CRPS. Our study has identified patients’ definition of recovery from CRPS, in order of priority, as relief from: their CRPS-related pain, generalised pain, movement restriction, reliance on medication, and stiffness.
Databáze: OpenAIRE
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