Relationships Between Childhood Experiences and Adulthood Outcomes in Women with PKU: A Qualitative Analysis
| Autor: | Drago Bratkovic, Anne Gannoni, Brianna Morante, Rachel M. Roberts, Tamara Muller, Annabel Sweeney |
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| Rok vydání: | 2016 |
| Předmět: |
0301 basic medicine
congenital hereditary and neonatal diseases and abnormalities education.field_of_study Parental support Bulimia nervosa Population MEDLINE nutritional and metabolic diseases 030105 genetics & heredity medicine.disease Article 03 medical and health sciences 030104 developmental biology Qualitative analysis medicine education Psychology Clinical psychology |
| Zdroj: | JIMD Reports ISBN: 9783662543849 |
| DOI: | 10.1007/8904_2016_567 |
| Popis: | The enduring impact of the childhood experiences of people with phenylketonuria (PKU) on their adulthood outcomes is equivocal. As the effect of childhood experiences on adulthood is well documented amongst the general population, the aim of this study was to explore childhood experiences considered significant by women with PKU as they relate to adult experiences and management of PKU, and psychological wellbeing.Eight women with PKU in South Australia underwent semi-structured interviews. The audio-recorded interviews were transcribed verbatim and analyzed using thematic analysis.Interviews revealed that feeling different to peers as a child, challenges with management of the condition during adolescence, parental and extended family support, and the perception of PKU as a burden during childhood were associated with adulthood experiences.Thus, it is proposed that these childhood factors have a combined, long-term impact. These findings have significant clinical implications, suggesting that early psychosocial intervention relating to these identified childhood experiences has the potential to enhance positive outcomes for adults with PKU. |
| Databáze: | OpenAIRE |
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