Evaluating a novel cervical orthosis, the Sheffield\ud Support Snood, in patients with amyotrophic lateral sclerosis/motor neuron disease with neck weakness
| Autor: | Susan Baxter, Christopher J McDermott, Gill Squire, Andrew Stanton, Joe Langley, Ann Quinn, Simon Judge, Heath Reed, Pamela J. Shaw, Oliver Wells, Nicola Murdoch Heron, Avril D. McCarthy, Mark Strong, Zoe Clarke |
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| Jazyk: | angličtina |
| Rok vydání: | 2016 |
| Předmět: |
Adult
Male Orthotic Devices medicine.medical_specialty Adolescent Cervical orthosis Disease Eating Young Adult 03 medical and health sciences 0302 clinical medicine Physical medicine and rehabilitation Surveys and Questionnaires medicine Neck weakness Humans New device In patient Motor Neuron Disease Amyotrophic lateral sclerosis Muscle Weakness business.industry Respiration Amyotrophic Lateral Sclerosis 030229 sport sciences Middle Aged medicine.disease Deglutition Neurology Current practice Physical therapy Female Neurology (clinical) business Neck 030217 neurology & neurosurgery Cohort study |
| ISSN: | 1466-0822 |
| Popis: | Current practice and guidelines recommend the use of neck orthoses for people with amyotrophic lateral sclerosis (ALS) to compensate for neck weakness and to provide surrogate neck control. However, available options are frequently described by patients as restrictive and unsuitable and there was a need for a new device that addressed the needs of people with ALS. This project utilized a co-design process to develop a new neck orthosis that was more flexible yet supportive. Following\ud development of a prototype device, a mixed methods cohort study was undertaken with patients and carers, in order to\ud evaluate the new orthosis. Twenty-six patients were recruited to the study, with 20 of these completing all phases of data collection. Participants described the impact of neck weakness on their life and limitations of existing supports. Evaluation of the new orthosis identified key beneficial features: notably, increased support while providing a greater range of movement, flexibility of use, and improved appearance and comfort. In conclusion, the results of this evaluation highlight\ud the value of this alternative option for people with ALS, and potentially other patient groups who require a neck orthosis. |
| Databáze: | OpenAIRE |
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