Limited upper limb functioning has impact on restrictions in participation and autonomy of patients with hereditary motor and sensory neuropathy 1a
| Autor: | Ivo N. van Schaik, Frans Nollet, Anita Beelen, Marianne de Visser, Annemieke J. Videler |
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| Přispěvatelé: | Rehabilitation medicine, AMS - Amsterdam Movement Sciences, AII - Amsterdam institute for Infection and Immunity, ANS - Amsterdam Neuroscience, Neurology |
| Jazyk: | angličtina |
| Rok vydání: | 2009 |
| Předmět: |
Adult
Male medicine.medical_specialty Activities of daily living Adolescent Cross-sectional study media_common.quotation_subject Self-concept Physical Therapy Sports Therapy and Rehabilitation Disability Evaluation Young Adult Social support Physical medicine and rehabilitation Charcot-Marie-Tooth Disease Surveys and Questionnaires Activities of Daily Living medicine Humans Young adult media_common Leg Rehabilitation Social Support General Medicine Middle Aged medicine.disease Self Concept Cross-Sectional Studies medicine.anatomical_structure Arm Physical therapy Upper limb Female Psychology Hereditary motor and sensory neuropathy Psychomotor Performance Autonomy |
| Zdroj: | Journal of rehabilitation medicine, 41(9), 746-750. Foundation for Rehabilitation Information |
| ISSN: | 1650-1977 |
| DOI: | 10.2340/16501977-0419 |
| Popis: | Objective To evaluate upper limb functioning, restrictions on participation and the independent contribution of upper and lower limb disability to participation in hereditary motor and sensory neuropathy 1a. Design Descriptive cross-sectional study. Subjects Forty-nine patients with hereditary motor and sensory neuropathy 1a. Methods Perceived upper limb functioning was evaluated using the Michigan Hand Outcomes Questionnaire and participation restrictions with the Impact on Participation and Autonomy Questionnaire. Upper and lower limb domains of Guy's Neurological Disability Scale were used to determine their impact on participation restrictions. Results Limitations in upper limb functioning were perceived by 98% of the patients. Median scores ranged between 70 points for overall hand function and 100 points for aesthetics (scale 0-100). Patients were least satisfied with dominant hand performance. Most patients (46-78%) reported their participation to be sufficient. Restrictions were reported in the domains work, family roles, and autonomy outdoors. Minor problems with restricted participation were indicated by 22-55%, severe problems by 2-12%. Upper limb functioning correlated significantly with all participation subscales. Upper limb disability was independently associated with participation restrictions, whereas lower limb disability was not. Conclusion Limitations in upper limb functioning were perceived by the majority of patients with hereditary motor and sensory neuropathy 1a and strongly related to restricted participation. |
| Databáze: | OpenAIRE |
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