Hemophilia treatment center: A stratification model for developing countries: A pilot study from India
Autor: | Tanuja Tanuja, Amrith Mathew, M Joseph John, Scott Dunkley, Ramandeep Kaur, Chepsy C Philip, Jasprit Singh, Naveen Kakkar |
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Jazyk: | angličtina |
Rok vydání: | 2017 |
Předmět: |
Pediatrics
medicine.medical_specialty Standard of care Developing country India lcsh:Medicine 030204 cardiovascular system & hematology 03 medical and health sciences Joint disease Comprehensive care 0302 clinical medicine Multidisciplinary approach medicine 030212 general & internal medicine lcsh:RT1-120 model lcsh:Nursing business.industry lcsh:R Level iv General Medicine medicine.disease Treatment center Hemophilia Treatment Center Medical emergency Level iii Level ii business |
Zdroj: | CHRISMED Journal of Health and Research, Vol 4, Iss 4, Pp 253-258 (2017) |
ISSN: | 2348-3334 |
Popis: | Background: Hemophilia center, treatment center (TC), hemophilia TC (HTC), and Hemophilia Comprehensive Care Center (CCC) are terminologies used to describe centers caring for persons with hemophilia (PWH). These are based on their capability to provide multidisciplinary care and laboratory services. Widely described are the European HTCs (EHTCs) and the European Hemophilia CCCs (EHCCCs). However, most centers in developing countries providing care for PWH have variable clinical expertise and laboratory facilities, which do not qualify for the existing models. Materials and Methods: This cross-sectional study was done to evaluate the laboratory and clinical care facilities available in HTCs in India. The survey questionnaire was sent to 62 HTCs in India. Laboratory and clinical care facilities were categorized based on a predefined stratification model. Level IV being the minimum and Level I the maximum were used to define clinical and laboratory facilities. Results: Fifty-two (85%) centers responded representing 17 states in India. Only 28 HTCs had attached laboratory services. Although all the centers cared for acute bleeds, only half managed chronic joint disease (Level III) while one-sixth could perform surgeries (Level II). Only one-third of the laboratories had instituted quality control measures and performed factor assays. Only four centers qualified for EHTC criteria and two for the EHCCC criteria. Conclusion: This HTC stratification model provides assessment and differentiation of the clinical and laboratory services. It allows an individual HTC to identify the standard of care and provides a framework for objectively planning, implementing, and evaluating its services. |
Databáze: | OpenAIRE |
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