Development and Validation of an Italian Adaptation of the Psychosocial Aspects of Hereditary Cancer Questionnaire
| Autor: | Elisabetta Razzaboni, Daniela Turchetti, Lea Godino, Marzena Franiuk, Carlo Chiorri, Liliana Varesco, Elisabetta De Matteis, Linda Battistuzzi, Elena Molinari |
|---|---|
| Přispěvatelé: | Franiuk M., Molinari E., Battistuzzi L., Razzaboni E., De Matteis E., Turchetti D., Godino L., Chiorri C., Varesco L. |
| Jazyk: | angličtina |
| Rok vydání: | 2021 |
| Předmět: |
0301 basic medicine
media_common.quotation_subject Genetic counseling Context (language use) 030105 genetics & heredity psychological assessment genetic testing 03 medical and health sciences 0302 clinical medicine medicine Psychology cancer Psychological testing General Psychology Genetic testing media_common genetic counseling medicine.diagnostic_test Brief Research Report BF1-990 hereditary cancer 030220 oncology & carcinogenesis Anxiety Observational study medicine.symptom Worry Psychosocial Clinical psychology |
| Zdroj: | Frontiers in Psychology Frontiers in Psychology, Vol 12 (2021) |
| Popis: | Individuals that attend cancer genetic counseling may experience test-related psychosocial problems that deserve clinical attention. In order to provide a reliable and valid first-line screening tool for these issues, Eijzenga and coworkers developed the Psychosocial Aspects of Hereditary Cancer (PAHC) questionnaire. The aim of this work was to develop an Italian adaptation of the PAHC (I-PACH). This prospective multicenter observational study included three stages: (1) development of a provisional version of the I-PAHC; (2) pilot studies aimed at testing item readability and revising the questionnaire; and (3) a main study aimed at testing the reliability and validity of the final version of the I-PAHC with the administration of a battery comprising measures of depression, anxiety, worry, stress, and life problems to 271 counselees from four cancer genetic clinics. Adapting the original PAHC to the Italian context involved adding two further domains and expanding the emotions domain to include positive emotions. While most of the items were found to be easy to understand and score, some required revision to improve comprehensibility; others were considered irrelevant or redundant and therefore deleted. The final version showed adequate reliability and validity. The I-PAHC provides comprehensive content coverage of cancer genetic-specific psychosocial problems, is well accepted by counselees, and can be considered a sound assessment tool for psychosocial issues related to cancer genetic counseling and risk assessment in Italy. |
| Databáze: | OpenAIRE |
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