Inclusion of diverse populations in genomics research and health services: Genomix workshop report
| Autor: | Nadeem Qureshi, Julian Barwell, Ella Lynch, Savio S. Mathew, Nasaim Khan, Michael W. Parker |
|---|---|
| Rok vydání: | 2017 |
| Předmět: |
0301 basic medicine
medicine.medical_specialty Epidemiology Project commissioning Genomic research Ethnic group Indigenous 03 medical and health sciences Underserved Population 0302 clinical medicine Health care medicine Genetics (clinical) Inclusion Diverse populations business.industry Public health Public Health Environmental and Occupational Health Public relations Health services 030104 developmental biology 030220 oncology & carcinogenesis Family medicine Original Article business Inclusion (education) |
| Zdroj: | Journal of Community Genetics. 8(4) |
| ISSN: | 1868-6001 1868-310X |
| Popis: | Clinical genetic services and genomic research are rapidly developing but, historically, those with the greatest need are the least to benefit from these advances. This encompasses low-income communities, including those from ethnic minority and indigenous backgrounds. The “Genomix” workshop at the European Society of Human Genetics (ESHG) 2016 conference offered the opportunity to consider possible solutions for these disparities from the experiences of researchers and genetic healthcare practitioners working with underserved communities in the USA, UK and Australia. Evident from the workshop and corresponding literature is that a multi-faceted approach to engaging communities is essential. This needs to be complemented by redesigning healthcare systems that improves access and raises awareness of the needs of these communities. At a more strategic level, institutions involved in funding research, commissioning and redesigning genetic health services also need to be adequately represented by underserved populations with intrinsic mechanisms to disseminate good practice and monitor participation. Further, as genomic medicine is mainstreamed, educational programmes developed for clinicians should incorporate approaches to alleviate disparities in accessing genetic services and improving study participation. |
| Databáze: | OpenAIRE |
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