Partner Burden: A Common Entity in Celiac Disease
| Autor: | Abhik Roy, Jude Fleming, Benjamin Lebwohl, Suzanne K. Lewis, Milka Monegro, Maria T. Minaya, Peter H.R. Green, Reuben K. Wong |
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| Rok vydání: | 2016 |
| Předmět: |
Adult
Male medicine.medical_specialty Multivariate analysis Time Factors Physiology Cross-sectional study Sexual Behavior Disease Personal Satisfaction Logistic regression Severity of Illness Index 03 medical and health sciences Young Adult 0302 clinical medicine Quality of life Cost of Illness Internal medicine Severity of illness medicine Humans Interpersonal Relations 030212 general & internal medicine Young adult Psychiatry Spouses Aged Aged 80 and over business.industry Gastroenterology Caregiver burden Middle Aged Celiac Disease Cross-Sectional Studies Logistic Models Caregivers Multivariate Analysis Quality of Life Patient Compliance 030211 gastroenterology & hepatology Female business |
| Zdroj: | Digestive diseases and sciences. 61(12) |
| ISSN: | 1573-2568 |
| Popis: | Caregiver burden is documented in several chronic diseases, but it has not been investigated in celiac disease (CD). We aim to quantify the burden to partners of CD patients and identify factors that affect the perceived burden. We surveyed patients with biopsy-proven CD and their partners. Patients completed CD-specific questions, including the validated Celiac Symptom Index (CSI) survey. Partners completed the validated Zarit Burden Interview (ZBI) and questions regarding sexual and relationship satisfaction. Univariable and multivariable analyses were used to assess the association between demographics, CD characteristics, and partner burden. In total, 94 patient/partner pairs were studied. Fifteen patients (16 %) reported a CSI score associated with a poor quality of life, and 34 partners (37 %) reported a ZBI score corresponding to mild-to-moderate burden. Twenty-two partners (23 %) reported moderate-to-low overall relationship satisfaction, and 12 (14 %) reported moderate-to-low sexual satisfaction. The degree of partner burden was directly correlated with patient CSI score (r = 0.27; p = 0.008), and there were moderate-to-strong inverse relationships between partners’ burden and relationship quality (r = −0.70; p |
| Databáze: | OpenAIRE |
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