End of life care for patients with cystic fibrosis
| Autor: | Susan Madge, T. Repetto, Dorota Sands, Paola Catastini, Lieven Dupont, Aleksandra Korzeniewska-Eksterowicz |
|---|---|
| Rok vydání: | 2011 |
| Předmět: |
Pulmonary and Respiratory Medicine
Terminal Care medicine.medical_specialty Palliative care Waiting Lists business.industry medicine.medical_treatment MEDLINE Disease Cystic fibrosis Quality of life (healthcare) Ambulatory care End of life Pediatrics Perinatology and Child Health Humans Medicine Lung transplantation Pediatrics Perinatology and Child Health business Intensive care medicine End-of-life care Curative care Lung Transplantation |
| Zdroj: | Journal of Cystic Fibrosis. 10:S37-S44 |
| ISSN: | 1569-1993 |
| DOI: | 10.1016/s1569-1993(11)60007-6 |
| Popis: | Palliative care is an approach that improves quality of life for patients and their families facing problems associated with a life-threatening illness. Care planning is particularly important in CF, where predicting a time of death is extremely difficult. The patient and family should receive realistic information about health status and further options of care. Particularly important is the explanation that treatment does not stop during the terminal phase of the disease, instead the primary aim is to alleviate unpleasant symptoms. More invasive end of life care is becoming the norm in patients awaiting lung transplantation. Terminal care should be organised in the place chosen by the patient and their family. Ideally terminal care should not end when the patient dies, instead psychological and spiritual support should continue to bereaved families. |
| Databáze: | OpenAIRE |
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