Development of a Psycho-Educational Support Program for Individuals with Primary Progressive Aphasia and their Care-Partners
| Autor: | Kristine Zachrich, Mary O’Hara, Darby Morhardt, Christina Wieneke, Emily Rogalski |
|---|---|
| Rok vydání: | 2017 |
| Předmět: |
Male
Coping (psychology) Psychotherapist Sociology and Political Science media_common.quotation_subject Article Primary progressive aphasia 03 medical and health sciences Interpersonal relationship 0302 clinical medicine Patient Education as Topic Aphasia Adaptation Psychological medicine Humans Dementia 030212 general & internal medicine Aged media_common 030214 geriatrics General Social Sciences Cognition General Medicine medicine.disease Self-Help Groups Aphasia Primary Progressive Feeling Female Thematic analysis medicine.symptom Psychology Clinical psychology |
| Zdroj: | Dementia (London) |
| ISSN: | 1741-2684 1471-3012 |
| Popis: | Primary progressive aphasia is a language-based dementia that initially spares other cognitive domains; however, aphasia interferes with many life roles such as work and interpersonal relationships. Psycho-educational programs, such as support groups have been shown to be effective for persons with Alzheimer’s dementia; however, little is known regarding their effectiveness for persons with primary progressive aphasia. This paper describes the development of a program that offers support, education and activities for persons with primary progressive aphasia and their care-partners and its feasibility. Development and structure of pilot and formal intervention groups are described. Thematic analysis of both groups included the following themes: (1) coping with limitations and language decline; (2) dealing with increased dependency; (3) expressing resilience and making adaptations; (4) experiencing stigma (pilot group) and confronting stigma (intervention group); (5) experiencing self-confidence; and (6) feeling a sense of belonging. The knowledge gained from this process may be useful in designing programs for individuals with aphasic dementia and preserved insight. Evidence-based data from supportive interventions for persons with primary progressive aphasia and their care-partners are needed. |
| Databáze: | OpenAIRE |
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