Identifying Needs for Self-management Interventions for Adults With CKD and Their Caregivers: A Qualitative Study
| Autor: | Meghan J. Elliott, Juli Finlay, Allan Grill, Marta Novak, Sharon E. Straus, Heather Beanlands, Paul E. Ronksley, Helen Tam-Tham, Maoliosa Donald, Susan Samuel, Dwight Sparkes, K. Scott Brimble, Claire L. Large, Lori Harwood, Maria Delgado, Matthew T. James, Gwen Herrington, Allison Tong, Blair Waldvogel, Chantel A. Large, Jennifer MacKay, Brenda R. Hemmelgarn |
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| Rok vydání: | 2019 |
| Předmět: |
Adult
Male Gerontology Canada media_common.quotation_subject 030232 urology & nephrology Psychological intervention 03 medical and health sciences 0302 clinical medicine Humans Medicine Generalizability theory 030212 general & internal medicine Renal Insufficiency Chronic Empowerment Qualitative Research Aged media_common Aged 80 and over Health Services Needs and Demand Self-management business.industry Self-Management Focus Groups Middle Aged Focus group 3. Good health Caregivers Nephrology Female Thematic analysis business Qualitative research Patient education |
| Zdroj: | American Journal of Kidney Diseases. 74:474-482 |
| ISSN: | 0272-6386 |
| DOI: | 10.1053/j.ajkd.2019.02.006 |
| Popis: | Rationale & Objective Fostering the ability of patients to self-manage their chronic kidney disease (CKD), with support from caregivers and providers, may slow disease progression and improve health outcomes. However, little is known about such patients’ needs for self-management interventions. We aimed to identify and describe the needs of adults with CKD and informal caregivers for CKD self-management support. Study Design Descriptive qualitative study using semi-structured interviews and focus groups. Setting & Participants 6 focus groups (37 participants) and 11 telephone interviews with adults with CKD (stages 1-5, not on renal replacement therapy) and informal caregivers from across Canada. Analytic Approach Thematic analysis. Results 3 major themes were identified: (1) empowerment through knowledge (awareness and understanding of CKD, diet challenges, medication and alternative treatments, attuning to the body, financial implications, mental and physical health consequences, travel and transportation restrictions, and maintaining work and education), (2) activation through information sharing (access, meaningful and relevant, timing, and amount), and (3) tangible supports for the health journey (family, community, and professionals). Limitations Participants were primarily white, educated, married, and English speaking, which limits generalizability. Conclusions There are opportunities to enhance CKD self-management support by addressing knowledge pertinent to living well with CKD and priority areas for sharing information and providing tangible support. Future efforts may consider the development of innovative CKD self-management support interventions based on the diverse patient and caregiver needs identified in this study. |
| Databáze: | OpenAIRE |
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