Generation of a function affect model for residents with advanced dementia
| Autor: | Esther Chang, Suzanne Brownhill, Joyce Simard, Amanda Johnson, Daniel Nicholls, Michel A Edenborough |
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| Jazyk: | angličtina |
| Rok vydání: | 2019 |
| Předmět: |
Adult
Male Affect (psychology) 03 medical and health sciences 0302 clinical medicine Quality of life (healthcare) Nursing nursing residential aged care facilities medicine person centred Humans Dementia Family Models Nursing 030212 general & internal medicine General Nursing Aged Aged 80 and over Terminal Care 030504 nursing Data Collection Cognitive reframing Focus Groups Middle Aged medicine.disease model of care Focus group Nursing Homes Affect Caregivers Transformational leadership advanced dementia end‐of‐life care Quality of Life Female New South Wales Thematic analysis 0305 other medical science Psychology Delivery of Health Care End-of-life care |
| Popis: | AIMS AND OBJECTIVES This article presents the generation of a model of care encompassing "function" and "affect" based on findings from a 2011 research project aimed at improving care delivery for people with advanced dementia. Objectives were to provide comprehensive and sustainable care, honouring and respecting the person. BACKGROUND Dementia is a debilitating, progressive, and terminal disease with a trajectory ranging from approximately 3 to 16 years, yet attention to end-of-life care, promoting comfort, alleviating suffering, and maximizing quality of life is frequently overlooked for people living in the advanced stages of the disease. METHODS The research project from which the model was drawn used a three-phase mixed methods approach at three residential aged care facilities (nursing homes) providing high care in New South Wales, Australia. Thematic analysis was elicited from focus group discussions with staff, family members, and carers of residents. FINDINGS Themes describe distinct dimensions of a model of care: "function" (dedication, designation, and deliberation) and "affect" (the personal outcomes revealed in relaxation, stimulation, and transformation). CONCLUSION Reframing nursing practice from task and disease orientation to person centred and relationship focused is essential in meeting the complete needs of people with advanced dementia. This transformational model of care may be useful in adapting to other end-of-life care settings. |
| Databáze: | OpenAIRE |
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