Meeting between experts: evaluation of the first UK forum for lay and professional experts in intersex
| Autor: | J. Alderson, Sarah M. Creighton, Catherine L Minto, Margaret Simmonds, L.-M. Liao |
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| Rok vydání: | 2002 |
| Předmět: |
Attitude of Health Personnel
media_common.quotation_subject Consensus Development Conferences as Topic Sex assignment Disorders of Sex Development Truth Disclosure Nursing Multidisciplinary approach Surveys and Questionnaires Medicine Humans Family Cooperative Behavior media_common Service (business) Evidence-Based Medicine Distrust business.industry Lived experience Patient Selection Gender Identity Infant General Medicine Plastic Surgery Procedures United Kingdom Outcome and Process Assessment Health Care Practice Guidelines as Topic Genital surgery business Attitude to Health Needs Assessment Program Evaluation |
| Zdroj: | Patient education and counseling. 54(2) |
| ISSN: | 0738-3991 |
| Popis: | At present the clinical management of intersex is in turmoil. The policy of non-disclosure of diagnosis is widespread and cosmetic genital surgery is routinely performed on infants throughout the world. Some clinicians feel such practices are in the interest of the intersex child and the family, but some intersex adults are calling for a moratorium on sex assignment genital surgery. These widely opposing views have led to distrust between groups. One way to begin to address these critical issues is to facilitate dialogue with equal input from clinicians and intersex people and families. Clinicians are experts by training, but patients and families are experts through lived experiences. Our paper reports the rationale, process and outcome of the first UK forum bringing together these different experts to address some of the most complex issues in clinical services. In communicating our experiences, we hope that it will provide a useful reference point for those seeking similar service-user/provider collaboration in other areas of medicine. |
| Databáze: | OpenAIRE |
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