Development and validation of a patient self-assessed questionnaire on satisfaction with communication of the multiple sclerosis diagnosis

Autor: Solari, A, Mattarozzi, K, Vignatelli, L, Giordano, A, Russo, P, Messmeruccelli, M, D'Alessandro, R, Pucci, E, Martinelli, V, Uccelli, Mm, Borreani, C, Trojano, M, Heesen, C, Mancardi, Gl, Milanese, C, Galimberti, S, Calabrese, D, Ferrari, G, Confalonieri, P, Mantegazza, R, Maggi, L, Colombo, B, Esposito, F, Moiola, L, Rodegher, M, Radaelli, M, Granella, F, Immovilli, P, Dalla Bella, E, Lugaresi, A, De Luca, G, Mattoscio, M, Di Ioia, M, Travaglini, D, Farina, D, Zimatore, G, Plasmati, I, Tortorella, C, Orsolamalpighi, S, Guidolin, L, Leone, M, Motti, L, Tola, Mr, Montanari, E, Guareschi, A, Pesci, I, Pattini, M, Feo, C, Torricelli, L, Santangelo, M, Stecchi, S, Scandellari, C, Balugani, R, La Mola, L, Montagna, P, Pizza, F, Avoni, P, Baldin, E, Delaj, L, Rinaldi, R, Baldi, E, Caniatti, L, Milani, P, Mussuto, V, Manzoni, M, Casmiro, M, Fiorani, L, Galeotti, M, Guerrini, C, Neri, W, Mambelli, L, Malagù, S, Naldi, P, Calzoni, S, Collimedaglia, L, Pietrolongo, E, Di Tommaso, V, Pace, M, Benedetti, M, Rossi, F, Pastoretrossello, M, Faccioli, L, Spinardi, L.
Přispěvatelé: Solari A., Mattarozzi K., Vignatelli L., Giordano A., Russo P.M., Uccelli M.M., D'Alessandro R., Montagna P., Pizza F., Avoni P., Baldin E., Delaj L., SIMS-Trial group, GERONIMUS group.
Rok vydání: 2010
Předmět:
Questionnaires
Adult
Male
medicine.medical_specialty
Neurology
Multiple Sclerosis
Psychometrics
Adolescent
Adolescent
Adult
Aged
Cognition
physiology
Communication
Disease Progression
Early Diagnosis
Factor Analysis
Statistical
Female
Humans
Male
Middle Aged
Multiple Sclerosis
psychology
Patient Satisfaction
Physician-Patient Relations
Psychiatric Status Rating Scales
Questionnaires
Reproducibility of Results
Young Adult
Newly diagnosed
psychology
Young Adult
Patient satisfaction
DIAGNOSIS COMMUNICATION
Cognition
Surveys and Questionnaires
medicine
Humans
Aged
Psychiatric Status Rating Scales
Physician-Patient Relations
PSYCHOMETRICS
business.industry
Multiple sclerosis
Communication
Reproducibility of Results
Statistical
Middle Aged
medicine.disease
Surgery
Clinical trial
Early Diagnosis
Patient Satisfaction
physiology
PATIENT-REPORTED OUTCOMES
Physical therapy
Disease Progression
Female
Neurology (clinical)
business
Factor Analysis
Statistical
Factor Analysis
Zdroj: Multiple sclerosis (Houndmills, Basingstoke, England). 16(10)
ISSN: 1477-0970
Popis: Background: We describe the development and clinical validation of a patient self-administered tool assessing the quality of multiple sclerosis diagnosis disclosure. Method: A multiple sclerosis expert panel generated questionnaire items from the Doctor’s Interpersonal Skills Questionnaire, literature review, and interviews with neurology inpatients. The resulting 19-item Comunicazione medico-paziente nella Sclerosi Multipla (COSM) was pilot tested/debriefed on seven patients with multiple sclerosis and administered to 80 patients newly diagnosed with multiple sclerosis. The resulting revised 20-item version (COSM-R) was debriefed on five patients with multiple sclerosis, field tested/debriefed on multiple sclerosis patients, and field tested on 105 patients newly diagnosed with multiple sclerosis participating in a clinical trial on an information aid. The hypothesized monofactorial structure of COSM-R section 2 was tested on the latter two groups. Results: The questionnaire was well accepted. Scaling assumptions were satisfactory in terms of score distributions, item—total correlations and internal consistency. Factor analysis confirmed section 2’s monofactorial structure, which was also test—retest reliable (intraclass correlation coefficient [ICC] 0.73; 95% CI 0.54—0.85). Section 1 had only fair test—retest reliability (ICC 0.45; 95% CI 0.12—0.69), and three items had 8—21% missed responses. Conclusions: COSM-R is a brief, easy-to-interpret MS-specific questionnaire for use as a health care indicator.
Databáze: OpenAIRE
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