If we knew then what we know now: The preparedness experience of pre-loss and post-loss dementia caregivers
| Autor: | Troy Andersen, Katherine P. Supiano, Cynthia Beynon, Bob Wong, Eli Iacob, Marilyn Luptak |
|---|---|
| Rok vydání: | 2020 |
| Předmět: |
medicine.medical_specialty
Family caregivers media_common.quotation_subject medicine.disease humanities Clinical Psychology Family member Caregivers Arts and Humanities (miscellaneous) Preparedness Developmental and Educational Psychology medicine Humans Dementia Family Grief Narrative Meaning (existential) Psychology Psychiatry media_common |
| Zdroj: | Death Studies. 46:369-380 |
| ISSN: | 1091-7683 0748-1187 |
| DOI: | 10.1080/07481187.2020.1731014 |
| Popis: | We evaluated the relationship between grief preparedness and grief experience in 106 family caregivers anticipating or who had experienced the death of a family member with dementia. Using a phenomenological lens to discern a process of meaning-making in narratives, we found preparation that included positive construction of memories, death as the end of suffering, relationship resolution, and shared construction of meaning were associated with positive grief. Those caregivers who experienced the family member's decline as traumatic, caregiver role loss, unavailable support, and difficulties creating a new life reported inadequate death preparation, and difficulty making meaning of the illness and death. |
| Databáze: | OpenAIRE |
| Externí odkaz: |
|