Ethical Issues in Cancer Genetics: 1) Whose Information Is It?
| Autor: | Andrea Farkas Patenaude, Jill Goldman, Karin M. Dent, Cate Walsh Vockley, Kelly Taylor, Meredith A. Keenan, Katherine A. Schneider, Anu Chittenden, Bonnie S. LeRoy, Judy Garber, Kelly J. Branda, Steven Joffe, Sonja Eubanks, Hazel Reynolds, Nancy Steinberg Warren |
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| Rok vydání: | 2006 |
| Předmět: |
Adult
Male medicine.medical_specialty Genetic counseling Adrenal Gland Neoplasms Breast Neoplasms Genetic Counseling Truth Disclosure Duty to warn Ethics Professional Genetics medicine Humans Confidentiality Obligation Psychiatry Genetics (clinical) Adaptor Proteins Signal Transducing Genetic testing Ovarian Neoplasms medicine.diagnostic_test business.industry Public health Nuclear Proteins Genes p53 Human genetics Family medicine Colonic Neoplasms Female Carrier Proteins MutL Protein Homolog 1 business |
| Zdroj: | Journal of Genetic Counseling. 15:491-503 |
| ISSN: | 1573-3599 1059-7700 |
| DOI: | 10.1007/s10897-006-9053-4 |
| Popis: | This article presents and discusses four clinical cases that exemplify the complexity of ethical dilemmas concerning the provider's obligation to disclose or withhold genetic information from patients. Case 1: What is the responsibility of the cancer genetics provider to ensure that a positive test results is shared with distant relatives? Case 2: To ensure that results go to at-risk relatives, do we have the right to ignore the wishes of the designated next-of-kin? Case 3: Do we have the right to reveal a familial BRCA1 mutation to a patient's relative, who is at 50% risk? Case 4: Do we have an obligation to reveal that a patient is not a blood relative and therefore, not at risk to have inherited a familial mutation? These cases form the basis for discussing the provider's dual obligations to keeping patient confidentiality and informing patients and families about risk (i.e. duty to warn). We also provide a summary of consensus points and additional discussion questions for each case. |
| Databáze: | OpenAIRE |
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