Psychosocial Management of the Patient With Duchenne Muscular Dystrophy
| Autor: | James Poysky, Melissa Gibbons, Janet Hoskin, Norbert J. Weidner, Kathi Kinnett, Mary K. Colvin, Christina Trout, Mario Damiani, Scott Moreland |
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| Rok vydání: | 2018 |
| Předmět: |
musculoskeletal diseases
congenital hereditary and neonatal diseases and abnormalities medicine.medical_specialty Palliative care business.industry Mental Disorders Duchenne muscular dystrophy MEDLINE Disease Psychiatric Rehabilitation medicine.disease Muscular Dystrophy Duchenne 03 medical and health sciences 0302 clinical medicine Multidisciplinary approach 030225 pediatrics Intervention (counseling) Pediatrics Perinatology and Child Health medicine Humans Muscular dystrophy business Intensive care medicine Psychosocial 030217 neurology & neurosurgery |
| Zdroj: | Pediatrics. 142:S99-S109 |
| ISSN: | 1098-4275 0031-4005 |
| DOI: | 10.1542/peds.2018-0333l |
| Popis: | In this article, we outline a comprehensive plan for the psychosocial management of patients with Duchenne muscular dystrophy (DMD) across the life span. In 2010, the Centers for Disease Control and Prevention sponsored the development of multidisciplinary management guidance for DMD, and in 2018, that guidance was updated. In the intervening years, a new emphasis was placed on studying and addressing the psychosocial issues that affect patients with DMD, driven in part by improved patient survival. Once viewed as ancillary to managing the significant medical needs of patients with DMD, it is now standard practice to integrate psychosocial management into the multidisciplinary management of the disease. It is also increasingly recognized that neurodevelopmental disorders in DMD occur at a higher rate than what was previously understood and that these disorders warrant early and intensive intervention. In this article, we expand on the content found in the 2018 DMD Care Considerations. |
| Databáze: | OpenAIRE |
| Externí odkaz: |
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