Strategies for improving access to clinical trials by teenagers and young adults with cancer: A qualitative study of health professionals’ views
| Autor: | Fiona Cowie, Nicholas B. Heaney, Ruth I. Hart, Dorothy Boyle, Larry Hayward, Angela B. Jesudason, Julia Lawton, David Cameron |
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| Rok vydání: | 2021 |
| Předmět: |
Consensus
Adolescent Health Personnel media_common.quotation_subject Health Services Accessibility Young Adult 03 medical and health sciences 0302 clinical medicine Resource (project management) Nursing Neoplasms Humans Medicine Young adult Qualitative Research media_common Clinical Trials as Topic Scope (project management) business.industry Clinical trial Oncology Work (electrical) 030220 oncology & carcinogenesis Workforce Bureaucracy business Qualitative research |
| Zdroj: | European Journal of Cancer Care. 30 |
| ISSN: | 1365-2354 0961-5423 |
| DOI: | 10.1111/ecc.13408 |
| Popis: | OBJECTIVE Few teenagers and young adults (TYA) with cancer participate in clinical trials. Lack of opportunity has been identified as a major barrier. We canvassed health professionals' views on how TYA's access to trials might be improved. METHODS We interviewed 35 professionals with responsibility for delivering or facilitating cancer care and/or clinical trials. We analysed data using a qualitative descriptive approach. RESULTS Interviewees viewed improving TYA's access to trials as challenging, but possible. They reframed the problem as one of rare disease and surmised that modifying the organisation, administration and resourcing of research (and care) might expand opportunities for both TYA and other patients with low volume conditions. Proposals coalesced around four themes: consolidating the pool of patients; streamlining bureaucratic requirements; investing in the research workforce; and promoting pragmatism in trial design. CONCLUSION Accounts suggest there is scope to improve access to trials by TYA with cancer and other patients with rare diseases. Though re-configuring care, research and resource frameworks would present substantial challenges, doing nothing would also have costs. Change will require the support of a range of stakeholders, and agreement as to the best way forward. Further work, such as priority setting exercises, may be necessary to reach a consensus. |
| Databáze: | OpenAIRE |
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