| Autor: |
Erin M. Wynings, Stephen R. Chorney, Rebecca L. Brooks, Ashley F. Brown, Ashley Sewell, Candice H. Bailey, Cindy Whitney, Yann-Fuu Kou, Romaine F. Johnson |
| Rok vydání: |
2023 |
| Předmět: |
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| Zdroj: |
International Journal of Pediatric Otorhinolaryngology. 164:111416 |
| ISSN: |
0165-5876 |
| DOI: |
10.1016/j.ijporl.2022.111416 |
| Popis: |
To determine the impact of a child with a tracheostomy on caregiver quality of life.A repeated cross-sectional analysis included families with tracheostomy-dependent children between 2019 and 2021. Caregivers were surveyed using the PedsQL™ Family Impact Module with assessments at tracheostomy placement and during ambulatory office visits.Two-hundred and fifty-five surveys were performed with 66 at tracheostomy placement (26%) and 189 at follow-up visits (74%). Compared to families with healthy children, total scores at placement (77.2 vs. 87.6, P .001) and follow-up visits (78.9 vs. 87.6, P .001) were significantly lower among pediatric tracheostomy families. Caregivers were likely to report significant improvement in emotional functioning (6.2 points; 95% CI: 0.5-12, P = .03) and worry (9 points, 95% CI: 2.1-15.9, P = .01) over time. Demographic variables demonstrated no confounding or interactive effects.The presence of a tracheostomy is associated with lower caregiver quality of life scores in the short- and long-term compared to caregivers of healthy children. Providers should be sensitive to these challenges and provide appropriate support for families of tracheostomy-dependent children. |
| Databáze: |
OpenAIRE |
| Externí odkaz: |
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Full Text from ScienceDirect