Rare diseases and now rare data?
| Autor: | Ségolène Aymé, Simon Woods, Matteo Macilotti, Mats G. Hansson, Hugh Dawkins, Deborah Mascalzoni, Bartha Maria Knoppers |
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| Rok vydání: | 2013 |
| Předmět: |
Biomedical Research
Information Dissemination business.industry Internet privacy Privacy laws of the United States Biology humanities Europe Rare Diseases Threatened species Genetics Humans sense organs skin and connective tissue diseases business Molecular Biology Confidentiality health care economics and organizations Genetics (clinical) Rare disease |
| Zdroj: | Nature Reviews Genetics. 14:372-372 |
| ISSN: | 1471-0064 1471-0056 |
| DOI: | 10.1038/nrg3494 |
| Popis: | Rare disease research is threatened by proposed changes to European privacy laws. Rare disease research is threatened by proposed changes to European privacy laws. |
| Databáze: | OpenAIRE |
| Externí odkaz: |
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