Myalgic encephalomyelitis/chronic fatigue Syndrome (ME/CFS): Investigating care practices pointed out to disparities in diagnosis and treatment across European Union

Autor:	Strand, Elin B., Nacul, Luis, Mengshoel, Anne Marit, Helland, Ingrid B., Grabowski, Patricia, Krumina, Angelika, Alegre Martín, José, Efrim-Budisteanu, Magdalena, Sekulic, Slobodan, Pheby, Derek, Sakkas, Giorgos K., Adella Sirbu, Carmen, Authier, François Jérôme, Murovska, Modra, Lacerda, Eliana, Estevez Lopez, Fernando, Scheibenbogen, C., Shi-Kova-Lekova, E., Lorusso, Lorenzo, Berkis, U., Westermeier, F., Riederer, M., Tobback, E., Meeus, Mira, Shikova-Lekova, E., Nielsen, H., Brandslund, I., Polo, O., De Korwin, J. D., Harrer, T., Prusty, B., Freitag, H., Trepel, D., Cullinan, John, Capelli, Enrica, Nora-Krukle, Z., Rasa, S., Vermeulen, R., Menhshoel, A. M., Helland, I. B., Zalewski, Paweł, Sepulveda, N., Sirbu, C. A., Vukadinovic, M., Marusic, U., Pisot, R., Castro-Marrero, Jesús., Blanco, Julià, Oltra, E., Miro, J., Berquist, J., Blomberg, J., Pheby, D., Edwards, J., Wang, X., Universitat Autònoma de Barcelona
Jazyk:	angličtina
Rok vydání:	2019
Předmět:	Male Coping (psychology) diagnosis medicine.medical_treatment Disease Pathology and Laboratory Medicine chronic fatigue syndrome Geographical locations 0302 clinical medicine Public health surveillance Surveys and Questionnaires Medicine and Health Sciences Public Health Surveillance 030212 general & internal medicine Practice Patterns Physicians' Fatigue media_common Netherlands 0303 health sciences Multidisciplinary Fatigue Syndrome Chronic treatment Depression Disease Management Research Assessment Cognitive behavioral therapy Europe myalgic encephalomyelitis Practice Guidelines as Topic Medicine Female ME/CFS Research Article medicine.medical_specialty Science MEDLINE Research and Analysis Methods 03 medical and health sciences Signs and Symptoms Diagnostic Medicine Mental Health and Psychiatry Chronic fatigue syndrome medicine media_common.cataloged_instance Humans European Union European union Healthcare Disparities 030304 developmental biology Treatment Guidelines Health Care Policy business.industry Mood Disorders medicine.disease Health Care Psychotherapy Family medicine Quality of Life People and places business Mental Health Therapies Delivery of Health Care
Zdroj:	PLoS ONE, Vol 14, Iss 12, p e0225995 (2019) PLoS ONE Dipòsit Digital de Documents de la UAB Universitat Autònoma de Barcelona European Network on ME/CFS (EUROMENE) 2019, ' Myalgic encephalomyelitis/chronic fatigue Syndrome (ME/CFS) : Investigating care practices pointed out to disparities in diagnosis and treatment across European Union ', PLOS ONE, vol. 14, no. 12, e0225995 . https://doi.org/10.1371/journal.pone.0225995
ISSN:	1932-6203
DOI:	10.1371/journal.pone.0225995
Popis:	ME/CFS is a chronic, complex, multisystem disease that often limits the health and functioning of the affected patients. Diagnosing patients with ME/CFS is a challenge, and many different case definitions exist and are used in clinical practice and research. Even after diagnosis, medical treatment is very challenging. Symptom relief and coping may affect how patients live with their disease and their quality of life. There is no consensus on which diagnostic criteria should be used and which treatment strategies can be recommended for patients. The purpose of the current project was to map the landscape of the Euromene countries in respect of national guidelines and recommendations for case definition, diagnosis and clinical approaches for ME/CFS patients. A 23 items questionnaire was sent out by email to the members of Euromene. The form contained questions on existing guidelines for case definitions, treatment/management of the disease, tests and questionnaires applied, and the prioritization of information for data sampling in research. We obtained information from 17 countries. Five countries reported having national guidelines for diagnosis, and five countries reported having guidelines for clinical approaches. For diagnostic purposes, the Fukuda criteria were most often recommended, and also the Canadian Consensus criteria, the International Consensus Criteria and the Oxford criteria were used. A mix of diagnostic criteria was applied within those countries having no guidelines. Many different questionnaires and tests were used for symptom registration and diagnostic investigation. For symptom relief, pain and anti-depressive medication were most often recommended. Cognitive Behavioral Therapy and Graded Exercise treatment were often recommended as disease management and rehabilitative/palliative strategies. The lack of consistency in recommendations across European countries urges the development of regulations, guidance and standards. The results of this study will contribute to the harmonization of diagnostic criteria and treatment for ME/CFS in Europe.
Databáze:	OpenAIRE
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