Skin-related quality of life in children and adolescents with congenital melanocytic naevi - an analysis of self- and parent reports
| Autor: | Markus A. Landolt, Clemens Schiestl, Martin Theiler, Kathrin Neuhaus, Ornella Masnari |
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| Rok vydání: | 2019 |
| Předmět: |
Pediatrics
medicine.medical_specialty Skin Neoplasms Adolescent Life quality MEDLINE Dermatology Affect (psychology) 030207 dermatology & venereal diseases 03 medical and health sciences 0302 clinical medicine Quality of life medicine Humans Child Melanoma Melanocytic naevi Nevus Pigmented Health professionals business.industry Parent reports humanities Proxy Infectious Diseases 030220 oncology & carcinogenesis Child Preschool Quality of Life business Psychosocial |
| Zdroj: | Journal of the European Academy of Dermatology and Venereology : JEADVReferences. 34(5) |
| ISSN: | 1468-3083 |
| Popis: | BACKGROUND: Congenital melanocytic nevi (CMN) may affect patient quality of life (QoL) due to medical complications (development of malignant melanoma or involvement of the central nervous system), skin-related discomfort or psychosocial sequelae. OBJECTIVES: To analyze skin-related QoL in children and adolescents with CMN and to identify predictors of low QoL. METHODS: Worldwide recruitment of participants through patient support groups. Data collection through a web-based survey. QoL was assessed using the Children's Dermatology Life Quality Index$^{©}$ (CDLQI). Demographic and CMN-related characteristics were examined as possible predictors of impaired QoL. RESULTS: 135 proxy-reports for children affected by CMN aged between 4-18 years (M = 9.34y, SD = 4.16y) and 28 self-reports of adolescents aged 14 -18 years (M =16.3y, SD = 1.2y) were included. The mean CDLQI score was 4.00 (SD = 4.39) for proxy-reports and 6.89 (SD = 5.85) for self-reports. Most parents (76%) reported 'no' or a 'small' impact, 19% a 'moderate', and 5% a 'very large' or 'extremely large' impact on their child's QoL. In self-reports, 46% of the adolescents reported 'no' or a 'small impact', 43% a 'moderate', and 11% a 'very large' or 'extremely large' impact. Visible CMN location, malignant melanoma, and higher child's age were important predictors of QoL impairments. CONCLUSIONS: Most CMN have a modest effect on QoL. However, there is large variability with a significant proportion of adolescents experiencing a moderate to large impact on QoL in contrast to children. Healthcare professionals should be aware of the predictors of QoL in children with CMN. |
| Databáze: | OpenAIRE |
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