Transition from paediatric to adult care in adolescents with neurological diseases and handicap
| Autor: | B. Chabrol, M. Milh |
|---|---|
| Přispěvatelé: | Hôpital de la Timone [CHU - APHM] (TIMONE), Anthropologie bio-culturelle, Droit, Ethique et Santé (ADES), Aix Marseille Université (AMU)-EFS ALPES MEDITERRANEE-Centre National de la Recherche Scientifique (CNRS) |
| Rok vydání: | 2020 |
| Předmět: |
Adult
Transition to Adult Care Adolescent [SDV]Life Sciences [q-bio] Intellectual disability Adult care MESH: Nervous System Diseases Cerebral palsy Educational therapy Young Adult 03 medical and health sciences MESH: Patient Care Team 0302 clinical medicine Multidisciplinary approach MESH: Child Humans Medicine 030212 general & internal medicine Child Paediatric care MESH: Adolescent Patient Care Team Epilepsy MESH: Humans business.industry Cerebral Palsy MESH: Transition to Adult Care MESH: Adult medicine.disease Disabled Children Chronic disorders 3. Good health Active participation Neurology MESH: Young Adult MESH: Disabled Children MESH: Interdisciplinary Communication Interdisciplinary Communication Neurology (clinical) Medical emergency Nervous System Diseases business 030217 neurology & neurosurgery Neurological diseases |
| Zdroj: | Revue Neurologique Revue Neurologique, Elsevier Masson, 2020, 176 (1-2), pp.37-42. ⟨10.1016/j.neurol.2019.09.001⟩ Revue Neurologique, 2020, 176 (1-2), pp.37-42. ⟨10.1016/j.neurol.2019.09.001⟩ |
| ISSN: | 0035-3787 |
| Popis: | International audience; The transfer of adolescents from paediatric care to adult health facilities is often difficult for the patients and their families and can lead to a breakdown in medical follow-up and therefore serious complications. Existing recommendations for the successful transition of patients with chronic disorders do not specifically address patients with handicap. Preparations for the transfer must be made well in advance. They must aim to achieve the autonomisation of adolescents by making them responsible and providing them with the knowledge that will enable them to manage their care themselves, the know-how to react appropriately if there is any change in their condition, and to move comfortably within the adult health system. This requires the active participation of the patient, his or her family and the paediatric and adult care teams. It involves multidisciplinary management plus the production and maintenance of an educational therapy programme. Finally, the identification of doctors trained in handicap, relevant sub-specialists and even expert patients could enable improvements in the continuum of complete and appropriate care for these patients within adult medicine. |
| Databáze: | OpenAIRE |
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