Transition from paediatric to adult care in adolescents with neurological diseases and handicap

Autor: B. Chabrol, M. Milh
Přispěvatelé: Hôpital de la Timone [CHU - APHM] (TIMONE), Anthropologie bio-culturelle, Droit, Ethique et Santé (ADES), Aix Marseille Université (AMU)-EFS ALPES MEDITERRANEE-Centre National de la Recherche Scientifique (CNRS)
Rok vydání: 2020
Předmět:
Adult
Transition to Adult Care
Adolescent
[SDV]Life Sciences [q-bio]
Intellectual disability
Adult care
MESH: Nervous System Diseases
Cerebral palsy
Educational therapy
Young Adult
03 medical and health sciences
MESH: Patient Care Team
0302 clinical medicine
Multidisciplinary approach
MESH: Child
Humans
Medicine
030212 general & internal medicine
Child
Paediatric care
MESH: Adolescent
Patient Care Team
Epilepsy
MESH: Humans
business.industry
Cerebral Palsy
MESH: Transition to Adult Care
MESH: Adult
medicine.disease
Disabled Children
Chronic disorders
3. Good health
Active participation
Neurology
MESH: Young Adult
MESH: Disabled Children
MESH: Interdisciplinary Communication
Interdisciplinary Communication
Neurology (clinical)
Medical emergency
Nervous System Diseases
business
030217 neurology & neurosurgery
Neurological diseases
Zdroj: Revue Neurologique
Revue Neurologique, Elsevier Masson, 2020, 176 (1-2), pp.37-42. ⟨10.1016/j.neurol.2019.09.001⟩
Revue Neurologique, 2020, 176 (1-2), pp.37-42. ⟨10.1016/j.neurol.2019.09.001⟩
ISSN: 0035-3787
DOI: 10.1016/j.neurol.2019.09.001
Popis: International audience; The transfer of adolescents from paediatric care to adult health facilities is often difficult for the patients and their families and can lead to a breakdown in medical follow-up and therefore serious complications. Existing recommendations for the successful transition of patients with chronic disorders do not specifically address patients with handicap. Preparations for the transfer must be made well in advance. They must aim to achieve the autonomisation of adolescents by making them responsible and providing them with the knowledge that will enable them to manage their care themselves, the know-how to react appropriately if there is any change in their condition, and to move comfortably within the adult health system. This requires the active participation of the patient, his or her family and the paediatric and adult care teams. It involves multidisciplinary management plus the production and maintenance of an educational therapy programme. Finally, the identification of doctors trained in handicap, relevant sub-specialists and even expert patients could enable improvements in the continuum of complete and appropriate care for these patients within adult medicine.
Databáze: OpenAIRE
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