Bioethical Issues in Neuropsychiatric Genetic Disorders
| Autor: | M. Concepción Martín-Arribas, Joaquin Fuentes |
|---|---|
| Rok vydání: | 2007 |
| Předmět: |
education.field_of_study
Mental Disorders education Population Brain Genetic Counseling Cognition Bioethics Adaptive skills Clinical Practice Psychiatry and Mental health Nursing Intervention (counseling) Pediatrics Perinatology and Child Health Screening programs Humans Mass Screening Engineering ethics Clinical care Psychology |
| Zdroj: | Child and Adolescent Psychiatric Clinics of North America. 16:649-661 |
| ISSN: | 1056-4993 |
| DOI: | 10.1016/j.chc.2007.02.003 |
| Popis: | Neurogenetic disorders share many characteristics with other rare disorders and raise complex bioethical issues for clinical practice and research. Because patients frequently present with cognitive or communicative impairments, special measures to guarantee consent and assent are required. Many neurogenetic disorders present with autistic behavior or borderline sociocommunicative aspects. The likelihood that early educational intervention benefits the adaptive skills of these persons leads to screening programs that pose bioethical challenges. The biggest conflicts come from the lack of research in clinical care and the limited application of biomedical ethics in the personal support services arena. Alternatives include the development of personal services portfolios, establishing and supporting bioethical committees, reviewing and improving ethical aspects in research initiatives in this population, and empowering clients (and their legally authorized representatives) for participation and representation. |
| Databáze: | OpenAIRE |
| Externí odkaz: |
|