| Autor: |
Daniel J. Karr, Michelle Bass, Rebecca Dent, Richard London, Laura B. Enyedi, Annette Bade, Wanda Pfeifer, Aaron M. Miller, Matthew D. Gearinger, B. Michele Melia, Monica Pacheco, Susan A. Cotter, Heather A Anderson, Heather Klem, Kenneth Adams, Joan Roberts, Donny W. Suh, Tammy Price, Sergul Erzurum, Ruth E. Manny, Ronald G.W. Teed, Peter Macdowell, Elise Harb, Melanie Christian, Reena Patel, Ann U. Stout, Troy Kieser, Raymond H. Chu, Anesu Mvududu, Vivian Wong, Tawna L Roberts, Angela Chen, Tamara S Oechslin, Richard L. Weaver, Michele Whitaker, Paula Rauch, Nancy Stevens, Elias I. Traboulsi, Karen Pollack, Noelle S. Matta, Robert P. Rutstein, Cheryl Capobianco, Paul G. Steinkuller, Gaylord Ventura, Carol Bradham, Mei Mellott, Darren L. Hoover, Jacqueline Rodena, Heidi Martin, Brian J. Forbes, Jill S. Anderson, Mary Louise Z. Collins, Robert Peters, Gil Binenbaum, Stephen P. Christiansen, Jayne Silver, Phoebe D. Lenhart, Marcela Frazier, Yasmin S. Bradfield, Kimberly G. Yen, Sara Meeder, Eileen Dittman, Lisa Fraine, Emi Sanders, Don Lyon, Nandini G. Gandhi, Wendy Marsh-Tootle, Pamela A. Huston, Ilana B Friedman, Lori Cooke, Beth Colon, Jonathan M. Holmes, Shelley Klein, Rosanne Superstein, Susannah Q. Longmuir, Sarah R. Hatt, Joan Do, Carmen Barnhardt, William F. Astle, Daniel E. Neely, Robert Duckman, Benjamin H. Ticho, Dipali Dave, Susanna M. Tamkins, Vanessa Vazquez, Rebecca Nielsen, Marilyn Vricella, Lernik Mesropian, Robert L. Estes, Gregory Ostrow, Laura Kirkeby, David G. Morrison, Andrew J. Toole, Nicole Fallaha, Paul J. Rychwalski, Kristy Dunlap, Susan Parker, Jeanine Romeo, David K. Wallace, Aaliyah Hamidullah, Edward Cheeseman, Mitchell Scheiman, David A. Leske, Caroline Belanger, Diana McOwen, Brian W. Arthur, Hee Jung Park, David I. Silbert, Tammy L. Yanovitch, David B. Petersen, Alex Christoff, Lesley Macsween, Sean P. Donahue, Xiaonong Liu, Eric Hein, David Robbins Tien, Lori Ann F. Kehler, Evelyn Koestenblatt, Indre M. Rudaitis, Jan Hilbrands, Sarah K. Jones, C. Gail Summers, Catherine Heyman, Jennifer Brady, Maynard Wheeler, Katherine K. Weise, Jorie Jackson, Ann M. Holleschau, Allison I. Summers, Kenneth Romanchuk, Megan Allen, Christie L. Morse, Inge De Becker, Sarah Downes, Tomohiko Yamada, Mitchell B. Strominger, Brian G. Mohney, David K. Coats, Susan Hayes, Freda Dallas, Amy K. Hutchinson, Deborah Clausius, Maryse Thibeault, Stacy L. Pineles, Lingkun Kong, Airaj Fasiuddin, Jeffery Colburn, Paula Handford, Blair Spencer, Tamiesha Frempong, Mae Millicent W. Peterseim, Hawke Yoon, Angela Alfaro, Catherine McDaniel, Jean E. Ramsey, Laura Liebermann, Laura Graham, Karen A. Karp, Stephen Van Iderstine, Earl R. Crouch, Evelyn A. Paysse, Alexander Khammar, Patricia L. Davis, J. McMurtrey, Bahram Rahmani, Judy Brower, Todd Goldblum, Yana Kiesau, Stephen R. Glaser, Scott R. Lambert, Karen D. Fern, Tara Cronin, Justin Smith, Maureen Flanagan, Marjean Taylor Kulp, Susan Crowe, Allison Jensen, Michael X. Repka, Adriana P. Grigorian, Nausheen Khuddus, Michael Bartiss, Ross Roegner, Faruk Ogre, Erick D. Bothun, Kristine Huang, Erin Herlihy, Daniel M. Laby, Mary A O'Hara, Tennille McGaw, Nicholas A. Sala, Samantha Garner, Mohamed A.W. Hussein, Barbara Soderling, Marianne Esguerra, Yi Pang |
| Rok vydání: |
2015 |
| Předmět: |
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| Zdroj: |
JAMA Ophthalmology. 133:461 |
| ISSN: |
2168-6165 |
| Popis: |
Importance The Intermittent Exotropia Questionnaire (IXTQ) is a patient, proxy, and parental report of quality of life specific to children with intermittent exotropia. We refine the IXTQ using Rasch analysis to improve reliability and validity. Observation Rasch analysis was performed on responses of 575 patients with intermittent exotropia enrolled from May 15, 2008, through July 24, 2013, and their parents from each of the 4 IXTQ health-related quality-of-life questionnaires (child 5 through 7 years of age and child 8 through 17 years of age, proxy, and parent questionnaires). Questionnaire performance and structure were confirmed in a separate cohort of 379 patients with intermittent exotropia. One item was removed from the 12-item child and proxy questionnaires, and response options in the 8- to 17-year-old child IXTQ and proxy IXTQ were combined into 3 response options for both questionnaires. Targeting was relatively poor for the child and proxy questionnaires. For the parent questionnaire, 3 subscales (psychosocial, function, and surgery) were evident. One item was removed from the psychosocial subscale. Resulting subscales had appropriate targeting. Conclusions and Relevance The Rasch-revised IXTQ may be a useful instrument for determining how intermittent exotropia affects health-related quality of life of children with intermittent exotropia and their parents, particularly for cohort studies. |
| Databáze: |
OpenAIRE |
| Externí odkaz: |
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