Living with chronic illness scale: international validation of a new self-report measure in Parkinson's disease
| Autor: | Mayela Rodríguez-Violante, Nelida Garretto, Tomoko Arakaki, Mario Álvarez, Carmen Rodriguez-Blazquez, Víctor Campos Arillo, Leire Ambrosio, Ivonne Pedroso Ibañez, Mari Carmen Portillo, Juan Carlos Martínez Castrillo, Ana Carvajal, Marcos Serrano Dueñas, Pablo Martinez-Martin |
|---|---|
| Jazyk: | angličtina |
| Rok vydání: | 2016 |
| Předmět: |
education.field_of_study
medicine.medical_specialty Intraclass correlation Population Life satisfaction Construct validity Article 03 medical and health sciences Cellular and Molecular Neuroscience 0302 clinical medicine Standard error Neurology Cronbach's alpha Scale (social sciences) medicine 030212 general & internal medicine Neurology (clinical) Internal validity education Psychiatry Psychology 030217 neurology & neurosurgery Clinical psychology |
| Zdroj: | Repositorio Institucional de la Consejería de Sanidad de la Comunidad de Madrid Consejería de Sanidad de la Comunidad de Madrid NPJ Parkinson's Disease Repisalud Instituto de Salud Carlos III (ISCIII) |
| Popis: | Understanding how a person lives with a chronic illness, such as Parkinson’s disease (PD), is necessary to provide individualized care and professionals role in person-centered care at clinical and community levels is paramount. The present study was aimed to analyze the psychometric properties of the Living with Chronic Illness-PD Scale (EC-PC) in a wide Spanish-speaking population with PD. International cross-sectional study with retest was carried out with 324 patients from four Latin American countries and Spain. Feasibility, acceptability, scaling assumptions, reliability, precision, and construct validity were tested. The study included 324 patients, with age (mean±s.d.) 66.67±10.68 years. None of the EC-PC items had missing values and all acceptability parameters fulfilled the standard criteria. Around two-third of the items (61.54%) met scaling assumptions standards. Concerning internal consistency, Cronbach’s alpha values were 0.68–0.88; item-total correlation was >0.30, except for two items; item homogeneity index was >0.30, and inter-item correlation values 0.14–0.76. Intraclass correlation coefficient for EC-PC stability was 0.76 and standard error of measurement (s.e.m.) for precision was 8.60 (for a EC-PC s.d.=18.57). EC-PC presented strong correlation with social support (rS=0.61) and moderate correlation with life satisfaction (rS=0.46). Weak and negligible correlations were found with the other scales. Internal validity correlations ranged from 0.46 to 0.78. EC-PC total scores were significantly different for each severity level based on Hoehn and Yahr and Clinical Impression of Severity Index, but not for Patient Global Impression of Severity. The EC-PC has satisfactory acceptability, reliability, precision, and validity to evaluate living with PD. |
| Databáze: | OpenAIRE |
| Externí odkaz: |
|