Assessing knowledge and attitudes about end of life: Evaluation of three instruments designed for adults with intellectual disability
| Autor: | Roger J. Stancliffe, Josephine M. Clayton, Gail Jeltes, Michele Wiese, Sue Read |
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| Jazyk: | angličtina |
| Rok vydání: | 2017 |
| Předmět: |
Adult
Male 030506 rehabilitation medicine.medical_specialty Health Knowledge Attitudes Practice Attitude to Death Psychometrics Persons with Mental Disabilities Test validity Education 03 medical and health sciences Intellectual Disability Surveys and Questionnaires Intellectual disability Developmental and Educational Psychology medicine Humans 0501 psychology and cognitive sciences Psychiatry Reliability (statistics) Terminal Care Knowledge level 05 social sciences Reproducibility of Results Fear Middle Aged medicine.disease Missing data R1 Life evaluation Female 0305 other medical science Psychology Comprehension Fear of death 050104 developmental & child psychology Clinical psychology |
| ISSN: | 1468-3148 |
| Popis: | Background\ud This paper examines the development and psychometric characteristics of three instruments about end of life, designed for use with adults with intellectual disability (ID). Respectively, the instruments assess understanding of the concept of death, end‐of‐life planning, and fear of death.\ud \ud Methods\ud Part 1: instruments were developed or adapted, and pilot tested with 11 adults with ID and 2 disability staff. Part 2: 39 adults with ID and 40 disability staff were assessed on all three instruments.\ud \ud Results\ud We evaluated comprehensibility, internal consistency, inter‐rater reliability, subscale: total score correlations, missing data, and withdrawal. Psychometric findings were mostly good. Overall, 23% of participants with ID withdrew at some point. This outcome may have been as much due to assessment fatigue as to sensitive content. There were no adverse events.\ud \ud Conclusions\ud People with ID can reliably complete assessments about end‐of‐life. Generally, each instrument was found to be comprehensible, reliable and valid. |
| Databáze: | OpenAIRE |
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