Cancer Data and Aboriginal Disparities (CanDAD)—developing an Advanced Cancer Data System for Aboriginal people in South Australia: a mixed methods research protocol
| Autor: | Janet Stajic, Harold Stewart, Paul Yerrell, David Banham, Michael Norris, David Roder, Margaret Cargo, Rachel Reilly, Jasmine Micklem, Kim Morey, Alex Brown |
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| Přispěvatelé: | Yerrell, Paul Henry, Roder, David, Cargo, Margaret, Reilly, Rachel, Banham, David, Micklem, Jasmine May, Morey, Kim, Stewart, Harold Bundamurra, Stajic, Janet, Norris, Michael, Brown, Alex DH |
| Jazyk: | angličtina |
| Rok vydání: | 2016 |
| Předmět: |
Research design
Male medicine.medical_specialty Native Hawaiian or Other Pacific Islander epidemiological data Datasets as Topic Indigenous 03 medical and health sciences 0302 clinical medicine Knowledge translation Neoplasms South Australia Protocol Medicine cancer Health Services Indigenous Humans 030212 general & internal medicine Retrospective Studies business.industry Multimethodology Health services research Australia General Medicine Health Status Disparities QUALITATIVE RESEARCH Data linkage mortality indigenous population 3. Good health Cancer registry narrative data Oncology Research Design 030220 oncology & carcinogenesis Family medicine Population Surveillance Indigenous Health Female Thematic analysis business Qualitative research |
| Zdroj: | BMJ Open |
| ISSN: | 2044-6055 |
| Popis: | In Australia, Aboriginal and Torres Strait Islander People carry a greater burden of cancerrelated mortality than non-Aboriginal Australians. The Cancer Data and Aboriginal Disparities Project aims to develop and test an integrated, comprehensive cancer monitoring and surveillance system capable of incorporating epidemiological and narrative data to address disparities and advocate for clinical system change. Methods and analysis: The Advanced Cancer Data System will integrate routinely collected unit record data from the South Australian Population Cancer Registry and a range of other data sources for a retrospective cohort of indigenous people with cancers diagnosed from 1990 to 2010. A randomly drawn non-Aboriginal cohort will be matched by primary cancer site, sex, age and year at diagnosis. Cross-Tabulations and regression analyses will examine the extent to which demographic attributes, cancer stage and survival vary between the cohorts. Narratives from Aboriginal people with cancer, their families, carers and service providers will be collected and analysed using patient pathway mapping and thematic analysis. Statements from the narratives will structure both a concept mapping process of rating, sorting and prioritising issues, focusing on issues of importance and feasibility, and the development of a real-Time Aboriginal Cancer Measure of Experience for ongoing linkage with epidemiological data in the Advanced Cancer Data System. Aboriginal Community engagement underpins this Project. Ethics and dissemination: The research has been approved by relevant local and national ethics committees. Findings will be disseminated in local andinternational peer-reviewed journals and conference presentations. In addition, the research will provide data for knowledge translation activities across thepartner organisations and feed directly into the Statewide Cancer Control Plan. It will provide a mechanism for monitoring and evaluating theimplementation of the recommendations in these documents. Refereed/Peer-reviewed |
| Databáze: | OpenAIRE |
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