Can we trust self-reported walking distance when determining EDSS scores in patients with multiple sclerosis? The Danish MS hospitals rehabilitation study
| Autor: | Egon Stenager, Ulrik Dalgas, Anders Guldhammer Skjerbæk, Peter Feys, Lars G. Hvid, Finn Boesen, Michael Nørgaard, Peter Vestergaard Rasmussen, Thor Petersen, Marie Louise Kjeldgaard-Jørgensen |
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| Jazyk: | angličtina |
| Rok vydání: | 2019 |
| Předmět: |
Adult
Male medicine.medical_specialty Multiple Sclerosis Denmark Outcome measurement Walking multiple sclerosis Danish Disability Evaluation 03 medical and health sciences Walking distance 0302 clinical medicine Physical medicine and rehabilitation Disease severity medicine Humans In patient 030212 general & internal medicine Rehabilitation Study Expanded Disability Status Scale business.industry Multiple sclerosis Middle Aged Multiple Sclerosis Chronic Progressive medicine.disease language.human_language Neurology language Female Self Report Neurology (clinical) EDSS primary progressive MS business 030217 neurology & neurosurgery |
| Zdroj: | Skjerbæk, A G, Boesen, F, Petersen, T, Rasmussen, P V, Stenager, E, Nørgaard, M, Feys, P, Kjeldgaard-Jørgensen, M L, Hvid, L G & Dalgas, U 2019, ' Can we trust self-reported walking distance when determining EDSS scores in patients with multiple sclerosis? The Danish MS hospitals rehabilitation study ', Multiple sclerosis (Houndmills, Basingstoke, England), vol. 25, no. 12, pp. 1653-1660 . https://doi.org/10.1177/1352458518795416 Skjerbæk, A G, Boesen, F, Petersen, T, Rasmussen, P V, Stenager, E, Nørgaard, M, Feys, P, Kjeldgaard-Jørgensen, M L, Hvid, L G & Dalgas, U 2019, ' Can we trust self-reported walking distance when determining EDSS scores in patients with multiple sclerosis? The Danish MS hospitals rehabilitation study ', Multiple Sclerosis Journal, vol. 25, no. 12, pp. 1653-1660 . https://doi.org/10.1177/1352458518795416 |
| Popis: | Background: In multiple sclerosis (MS), the Expanded Disability Status Scale (EDSS) reflects disease severity. Although parts of the EDSS are dependent on actual walking distance, self-reported statements are often applied. Objectives: The purpose of the present study was, therefore, to compare self-reported walking distance to actual walking distance to outline how this influences EDSS scoring. Methods: MS patients with EDSS 4.0–7.5 ( n = 273) were included from the Danish MS hospitals rehabilitation study ( n = 427). All patients subjectively classified their maximal walking distance according to one of seven categories (>500; 300–499; 200–299; 100–199; 20–99; 5–19; 0–4 m). Subsequently, actual maximal walking distance was assessed and EDSS was determined from both self-reported walking distance (EDSSself-report) and actual walking distance (EDSSactual). Results: In 145 patients (53%), self-reported walking distance was misclassified when compared to the actual walking distance. Misclassification was more frequent in patients using walking aids (64% vs. 44%, p self-report vs EDSSactual) of ⩾0.5 point in 24%. Conclusion: In MS patients with EDSS 4.0–7.5, 53% misclassified their walking distance yielding incorrect EDSS scores in 24%. Therefore, correct EDSS determination must be based on measurement of actual walking distance. |
| Databáze: | OpenAIRE |
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