Utilization and uptake of clinical genetics services in high-income countries: A scoping review
| Autor: | Ursula Ellis, Patricia Birch, Nick Dragojlovic, GenCOUNSEL Study, Jan M. Friedman, Larry D. Lynd, Alison M. Elliott, Shelin Adam, Shahrzad Salmasi, Nicola Kopac, Kennedy Borle, Rachel Tandun |
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| Rok vydání: | 2021 |
| Předmět: |
Strategic planning
medicine.medical_specialty medicine.diagnostic_test Public economics Developed Countries 030503 health policy & services Health Policy Genetic counseling Prenatal care United States 03 medical and health sciences 0302 clinical medicine Scale (social sciences) Workforce Income medicine Humans Medical genetics 030212 general & internal medicine Business 0305 other medical science Developing Countries Health policy Genetic testing |
| Zdroj: | Health Policy. 125:877-887 |
| ISSN: | 0168-8510 |
| Popis: | Ongoing rapid growth in the need for genetic services has the potential to severely strain the capacity of the clinical genetics workforce to deliver this care. Unfortunately, assessments of the scale of this health policy challenge and potential solutions are hampered by the lack of a consolidated evidence base on the growth in genetic service utilization. To enable health policy research and strategic planning by health systems in this area, we conducted a scoping review of the literature on the utilization and uptake of clinical genetics services in high-income countries published between 2010 and 2018. One-hundred-and-ninety-five unique studies were included in the review. Most focused on cancer (85/195; 44%) and prenatal care (50/195; 26%), which are consistently the two areas with the greatest volume of genetic service utilization in both the United States and other high-income countries. Utilization and uptake rates varied considerably and were influenced by contextual factors including health system characteristics, provider knowledge, and patient preferences. Moreover, growth in genetic service utilization appears to be driven to a significant degree by technological advances and the integration of new tests into clinical care. Our review highlights both the policy challenge posed by the rapid growth in the utilization of genetic services and the variability in this trend across clinical indications and health systems. |
| Databáze: | OpenAIRE |
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