Situational Analysis of Parenting Problems for Caregivers of Children with Sickle Cell Syndromes
| Autor: | Ronald T. Brown, A. Adrienne Walker, Dennis Drotar, Richard G. Lambert, Vicki Bunke, Carolyn E. Ievers-Landis |
|---|---|
| Rok vydání: | 2001 |
| Předmět: |
Male
Coping (psychology) Adolescent media_common.quotation_subject Anemia Sickle Cell Disease Personality Assessment Social issues Developmental psychology Activities of Daily Living Adaptation Psychological Developmental and Educational Psychology medicine Humans Child media_common Parenting Sick role Sick Role medicine.disease Sickle cell anemia Black or African American Psychiatry and Mental health Feeling El Niño Child Preschool Pediatrics Perinatology and Child Health Patient Compliance Female Personality Assessment Inventory Psychology Clinical psychology |
| Zdroj: | Journal of Developmental & Behavioral Pediatrics. 22:169-178 |
| ISSN: | 0196-206X |
| Popis: | A situational analysis of problematic situations was conducted for 37 caregivers of children with sickle cell disease (SCD) who ranged in age from 5 to 13 years. Participants responded to a semistructured interview related to caring for a child with SCD. The interview included the domains of medication adherence, nutrition, minimizing and coping with pain episodes, social problems, academic difficulties, and children's expression of negative feelings related to having SCD. Caregivers described a total of 356 problems. Almost all caregivers reported experiencing problems with their children's nutrition (n = 35), minimizing pain episodes (n = 34), and their children expressing feelings about having SCD (n = 33). Moderately challenging and emotionally upsetting problems were reported for coping with pain episodes. The total number of problems was significantly higher for boys than for girls. Nutrition issues were more frequently reported for younger children. Findings have salient clinical implications for the care of children with SCD. |
| Databáze: | OpenAIRE |
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