Psychosocial group intervention to enhance self-management skills of people with dementia and their caregivers: study protocol for a randomized controlled trial
| Autor: | Merja H. Suominen, Niina Savikko, Marja-Liisa Laakkonen, Eeva Hölttä, Timo E. Strandberg, Kaisu H. Pitkälä |
|---|---|
| Jazyk: | angličtina |
| Rok vydání: | 2012 |
| Předmět: |
Quality of life
Male medicine.medical_specialty Psychological intervention Medicine (miscellaneous) Gerontological nursing law.invention 03 medical and health sciences Study Protocol 0302 clinical medicine Randomized controlled trial Geriatric Nursing law Outcome Assessment Health Care medicine Self-management Dementia Humans Pharmacology (medical) 030212 general & internal medicine Prospective Studies Cognitive decline Psychiatry Aged Geriatrics lcsh:R5-920 business.industry medicine.disease Community Health Nursing 3. Good health Self Care Self-Help Groups Caregivers Research Design Caregiving Psychotherapy Group Group rehabilitation Empowerment Female Power Psychological lcsh:Medicine (General) business Self-efficacy Psychosocial 030217 neurology & neurosurgery Program Evaluation |
| Zdroj: | Trials Trials, Vol 13, Iss 1, p 133 (2012) |
| ISSN: | 1745-6215 |
| Popis: | Background After diagnosis of a dementing illness, patients and their spouses have many concerns related to the disease and their future. This often leads to poor psychological well-being and reduced health-related quality of life (HRQoL) of the family. Support for self-management skills has been proven to be an effective method to improve prognosis of asthma, heart failure and osteoarthritis. However, self-management interventions have not been studied in dementia. Therefore, our aim was to examine, in an objective-oriented group intervention, the efficacy of self-management support program (SMP) on the HRQoL of dementia patients and their spousal caregivers as well as on the sense of competence and psychological well-being of caregivers. Methods During the years 2011 to 12, 160 dementia patients and their spouses will be recruited from memory clinics and randomized into two arms: 80 patients for group-based SMP sessions including topics selected by the participants, 80 patients will serve as controls in usual community care. Sessions may include topics on dementia, community services, active lifestyle and prevention for cognitive decline, spousal relationship, future planning and emotional well-being. The patients and spouses will have their separate group sessions (ten participants per group) once a week for eight weeks. Main outcome measures will be patients’ HRQoL (15D) and spousal caregivers’ HRQoL (RAND-36), and sense of competence (SCQ). Secondary measures will be caregivers’ psychological well-being (GHQ-12) and coping resources, patients’ depression, cognition and signs of frailty. Data concerning admissions to institutional care and the use and costs of health and social services will be collected during a two-year follow-up. Discussion This is a ‘proof-of-concept’ study to explore the efficacy of group support for self-management skills among dementia families. It will also provide data on cost-effectiveness of the intervention. Trial registration ACTRN12611001173987 |
| Databáze: | OpenAIRE |
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