Health Care Transition Perceptions Among Parents of Adolescents with Congenital Heart Defects in Georgia and New York
| Autor: | Sherry L. Farr, Fred H. Rodriguez, Cheryl Raskind-Hood, Kristin M. Sommerhalter, Laura M. Gaydos, Olushola Fapo, Daphne T. Hsu, Jill Glidewell, George K. Lui, Trenton Hoffman, Alissa R. Van Zutphen, Wendy Book |
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| Rok vydání: | 2020 |
| Předmět: |
Adult
Heart Defects Congenital Male Parents Transition to Adult Care medicine.medical_specialty Georgia Adolescent media_common.quotation_subject New York Specialty Adult care 030204 cardiovascular system & hematology Article 03 medical and health sciences 0302 clinical medicine Quality of life (healthcare) Surveys and Questionnaires 030225 pediatrics Perception Health care medicine Humans Child Adult health media_common Insurance Health business.industry Vascular surgery Family medicine Pediatrics Perinatology and Child Health Quality of Life Female Cardiology and Cardiovascular Medicine business Attitude to Health Insurance coverage |
| Zdroj: | Pediatr Cardiol |
| ISSN: | 1432-1971 0172-0643 |
| DOI: | 10.1007/s00246-020-02378-z |
| Popis: | With increasing survival trends for children and adolescents with congenital heart defects (CHD), there is a growing need to focus on transition from pediatric to adult specialty cardiac care. To better understand parental perspectives on the transition process, a survey was distributed to 451 parents of adolescents with CHD who had recent contact with the healthcare system in Georgia (GA) and New York (NY). Among respondents, 90.7% reported excellent, very good or good health-related quality of life (HRQoL) for their adolescent. While the majority of parents (77.8%) had been told by a provider about their adolescent's need to transition to adult specialty cardiac care, most reported concerns about transitioning to adult care. Parents were most commonly concerned with replacing the strong relationship with pediatric providers (60.7%), locating an appropriate adult provider (48.7%), and accessing adult health insurance coverage (43.6%). These findings may offer insights into transition planning for adolescents with CHD. |
| Databáze: | OpenAIRE |
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