Patient and caregiver perceptions of the social impact of advanced Parkinson’s disease and dyskinesias
| Autor: | Eldad Melamed, Israel Steiner, Ilan Ziv, Ruth Djaldetti, Alexander Khlebtovsky, Amihai Rigbi, Alona Gad |
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| Rok vydání: | 2012 |
| Předmět: |
Male
Dyskinesia Drug-Induced medicine.medical_specialty Levodopa Parkinson's disease Neurology media_common.quotation_subject Embarrassment Disease Antiparkinson Agents Surveys and Questionnaires otorhinolaryngologic diseases medicine Humans Social Change Psychiatry Biological Psychiatry Aged media_common Social perception Social change Parkinson Disease Middle Aged medicine.disease nervous system diseases Psychiatry and Mental health Caregivers Social Perception Feeling Regression Analysis Female Neurology (clinical) Psychology medicine.drug |
| Zdroj: | Journal of Neural Transmission. 119:1367-1371 |
| ISSN: | 1435-1463 0300-9564 |
| Popis: | Parkinson's disease (PD) exacts a physical and emotional toll on both patients and family. The aim of this study was to compare patient and caregiver perceptions of the social consequences of basic symptoms of PD and levodopa-induced dyskinesias. Forty patients with PD and dyskinesias and 35 of their caregivers completed a self-report questionnaire on the impact of PD and dyskinesias on their feelings of security and embarrassment and participation in family/social events, and indicated their preference for the "on" (with dyskinesias) or the "off" (without dyskinesias) state. The patients scored significantly higher than the caregivers did on the negative social impact of the disease in general (p = 0.002) and of the dyskinesias in particular (p = 0.03). Nevertheless, the patients expressed a significantly greater preference for the "on" state (83 %) than the caregivers (59 %) (p = 0.03). Preferences turned to be reverse in direction among spouse-caregivers who significantly preferred the "off" state (54 %) than the patients (25 %) (p = 0.04). Although patients have a worse perception of the effects of PD than their caregivers do, they prefer the more independent "on" state, whereas their caregivers prefer the "off" state. |
| Databáze: | OpenAIRE |
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