Development of a hidradenitis suppurativa patient decision aid
| Autor: | Christine Yannuzzi, Sandra Guilbault, Christopher Sayed, Olivia McBride, Tanja Samardzic, Barry I. Resnik, Donna McLean, Jerry Tan, Mia Sisic, Robert P. Dellavalle |
|---|---|
| Rok vydání: | 2020 |
| Předmět: |
medicine.medical_specialty
media_common.quotation_subject education Decision Making Dermatology Decision Support Techniques Presentation Surveys and Questionnaires Health care medicine Decision aids Humans Hidradenitis suppurativa media_common Evidence-Based Medicine business.industry Small sample General Medicine medicine.disease Hidradenitis Suppurativa Patient Satisfaction Preparedness Family medicine Practice Guidelines as Topic Patient representatives Thematic analysis Patient Participation business |
| Zdroj: | Dermatology online journal. 26(11) |
| ISSN: | 1087-2108 |
| Popis: | Background: Patient decision aids (PDAs) are tools that facilitate informed shared decision-making between patients and health care providers. To address a previously identified need in treatment decision-making in hidradenitis suppurativa (HS), we developed an HS-PDA.Methods: Development of the HS-PDA was based on International Patient Decision Aids Standards. Evidence was derived from the North American Clinical Management Guidelines for HS.Results: Content from guidelines was transformed into patient-friendly language and reviewed by three physicians and two patient representatives. Feedback on HS-PDA content, presentation and practicality was obtained from 7 HS patients and 5 physicians. Revisions were made following thematic analysis. All patients felt the content on treatment options contained the right amount of information and 5 found it helpful to see these options contextualized to their values. Each stated they would use the HS-PDA during treatment decision-making. Three and four physicians respectively indicated the content was accurate and language was patient-friendly.Limitations: Small sample sizes may limit generalizability.Conclusion: This HS-PDA was developed in accordance with international standards based on current HS guidelines with input from patients and physicians. It is available online without cost. |
| Databáze: | OpenAIRE |
| Externí odkaz: |
|