A mismatch between supply and demand of social support in dementia care

Autor: Martin P.J. van Boxtel, Lizzy M. M. Boots, Alieske E. H. Dam, Frans R.J. Verhey, Marjolein E. de Vugt
Přispěvatelé: Psychiatrie & Neuropsychologie, RS: MHeNs - R1 - Cognitive Neuropsychiatry and Clinical Neuroscience, Section Neuropsychology, RS: FPN NPPP I, MUMC+: MA Med Staf Spec Psychiatrie (9)
Jazyk: angličtina
Rok vydání: 2018
Předmět:
Zdroj: International Psychogeriatrics, 30(6), 881-892. Cambridge University Press
ISSN: 1041-6102
DOI: 10.1017/s1041610217000898
Popis: Background:Access to social support contributes to feelings of independence and better social health. This qualitative study aims to investigate multi-informant perspectives on informal social support in dementia care networks.Methods:Ten spousal caregivers of people with dementia (PwD) completed an ecogram, a social network card and a semi-structured interview. The ecogram aimed to trigger subjective experiences regarding social support. Subsequently, 17 network members were interviewed. The qualitative analyses identified codes, categories, and themes.Results:Sixth themes emerged: (1) barriers to ask for support; (2) facilitators to ask for support; (3) barriers to offer support; (4) facilitators to offer support; (5) a mismatch between supply and demand of social support; and (6) openness in communication to repair the imbalance.Discussion:Integrating social network perspectives resulted in a novel model identifying a mismatch between the supply and demand of social support, strengthened by a cognitive bias: caregivers reported to think for other social network members and vice versa. Openness in communication in formal and informal care systems might repair this mismatch.
Databáze: OpenAIRE