A survey of the outcome of prophylaxis, on-demand treatment or combined treatment in 18-35-year old men with severe haemophilia in six countries
| Autor: | van Jitse Dijk, Declan Noone, Brian O'Mahony, Lucia Prihodová |
|---|---|
| Přispěvatelé: | Faculteit Medische Wetenschappen/UMCG, Science in Healthy Ageing & healthcaRE (SHARE), Public Health Research (PHR) |
| Rok vydání: | 2012 |
| Předmět: |
Adult
Male Canada Pediatrics medicine.medical_specialty Adolescent Health utility Health Status haemophilia EUROQOL EQ-5D Hemorrhage on demand Hemophilia A Haemophilia THERAPY Hemophilia B Factor IX Young Adult Combined treatment Quality of life QUALITY-OF-LIFE EQ-5D Surveys and Questionnaires medicine Humans Young adult Genetics (clinical) Netherlands Analysis of Variance Bleeding episodes Factor VIII Coagulants business.industry Hematology General Medicine medicine.disease United Kingdom On demand treatment prophylaxis HEALTH France Poland business Ireland |
| Zdroj: | Haemophilia, 19(1), 44-50. Wiley |
| ISSN: | 1351-8216 |
| DOI: | 10.1111/j.1365-2516.2012.02934.x |
| Popis: | A number of studies have been published on the benefits of prophylactic treatment in adults with haemophilia. However, in many countries, it is considered as optional due to financial constraints. This survey was carried out to examine the long-term effects of prophylaxis and the continuing benefit of the treatment into adulthood. Self-assessed health-related data and the EQ-5D questionnaire measuring health utility were collected from 124 men (26.9 ± 4.6 years) from Canada (N = 40), France (N = 14), Ireland (N = 17), the Netherlands (N = 16), Poland (N = 24) and the UK (N = 13). The respondents were split into four groups: On-Demand |
| Databáze: | OpenAIRE |
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