Disclosure of their HIV status to perinatally infected youth using the adapted Blasini disclosure model in Haiti and the Dominican Republic
| Autor: | Consuelo M. Beck-Sague, Gladys E. Ibañez, Vanessa Rouzier, Patricia Dorceus, Stephanie Gaston, Sharice M. Preston, Ileana Blasini, Jessy G. Dévieux, Mina Halpern, Jean W. Pape, Stephen W. Nicholas, Andrew G. Dean, Maria Claudia Pinzón-Iregui, Rosa Abreu-Pérez, Leonel Lerebours-Nadal, Rachel Bertrand |
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| Rok vydání: | 2015 |
| Předmět: |
education.field_of_study
medicine.medical_specialty Truth Disclosure business.industry Medical record Immunology Population Psychological intervention Mental health Article Discontinuation Infectious Diseases Patient satisfaction Intervention (counseling) Immunology and Allergy Medicine education business Psychiatry |
| Zdroj: | AIDS. 29:S91-S98 |
| ISSN: | 0269-9370 |
| DOI: | 10.1097/qad.0000000000000665 |
| Popis: | OBJECTIVES: To assess the safety acceptability and preliminary efficacy of a culturally-adapted disclosure intervention for perinatally HIV-infected combined antiretroviral therapy patients in Haiti and the Dominican Republic. DESIGN: A quasi-experimental trial was conducted comparing caregiver-youth pairs who completed the intervention [adapted Blasini disclosure model (aBDM)] to pairs who discontinued aBDM participation before disclosure. aBDM consists of five components: structured healthcare worker training; one-on one pre-disclosure intervention/education sessions for youth (describing pediatric chronic diseases including cancer diabetes and HIV) and for caregivers (strengthening capacity for disclosure); a scheduled supportive disclosure session; and one-on-one postdisclosure support for caregivers and youth. METHODS: Caregivers of nondisclosed combined antiretroviral therapy patients aged 10.0-17.8 years were invited to participate. Data were collected by separate one-on-one face-to-face interviews of caregivers and youth by study staff and medical record review by pediatricians at enrollment and 3 months after disclosure or after intervention discontinuation. RESULTS: To date 65 Dominican Republic and 27 Haiti caregiver-youth pairs have enrolled. At enrollment only 46.4% of youth had viral suppression and 43.4% of caregivers had clinically significant depressive symptomatology. To date two serious study-related adverse events have occurred. Seven of the 92 (7.6% 6 in the Dominican Republic) enrolled pairs discontinued participation before disclosure and 39 had completed postdisclosure participation. Median plasma HIV-RNA concentration was lower in youth who completed aBDM than in youth who discontinued participation before aBDM disclosure ( |
| Databáze: | OpenAIRE |
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