A Study Using Visual Art Methods to Explore the Perceptions and Barriers of Self-Management in Children and Adolescents with Lymphedema
| Autor: | Sandrine Mestre, Isabelle Quéré, Christine Moffatt, Susie Murray, Aimee Aubeeluck, Elodie Stasi, Sara Rowan |
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| Jazyk: | angličtina |
| Rok vydání: | 2019 |
| Předmět: |
Male
self-management Adolescent media_common.quotation_subject lymphoedema Emotional Adjustment Visual arts Lymphatic System Upper Extremity children Patient Education as Topic hemic and lymphatic diseases Perception Compression Bandages Surveys and Questionnaires medicine Humans adolescents Lymphedema Child media_common Self-efficacy Massage Self-management Audiovisual Aids Disease Management Original Articles medicine.disease Skin Care Self Efficacy United Kingdom body regions Self Care Treatment Outcome Italy Lower Extremity Child Preschool Chronic Disease Quality of Life Female France Cardiology and Cardiovascular Medicine Psychology self-efficacy |
| Zdroj: | Lymphatic Research and Biology |
| ISSN: | 1557-8585 1539-6851 |
| Popis: | Background: The study had two related aims: To explore, using visual art methodology, how children and adolescents perceive their Lymphoedema and conceptualise the barriers and enablers in self-management and to explore the role of an educational camp in promoting self-efficacy.\ud \ud Methods: Participants (speaking English, French and Italian) were recruited during an educational camp for children with Lymphoedema. Children and adolescents used different methodologies to depict living and self-managing their condition. Younger children (aged 5 -12) drew pictures and all children and adolescents (aged 5 -18) were given cameras and asked to take photographs that depicted their experience of learning self-management of their condition during the camp. Rose’s critical visual methodology framework was used for analysis. \ud \ud Results: Analysis of the data produced 5 categories: Normal versus altered childhood, living with Lymphoedema, perceptions of Lymphoedema and self-care in younger children, Adolescents perception of living and managing Lymphoedema, Learning self-efficacy and Insights into cultural differences in self-care \ud \ud Conclusions: The study has shown that self-management is complex. Children and adolescents face many daily challenges and frustrations in managing their condition in addition to the normal challenges of development and growth that impact on: home life, time with friends, school activities and relationships. Children expressed a deep longing for cure and a recognition that their lives were altered by having the condition that led to limitations in sport and wearing fashionable clothes and shoes. The importance of relationships with professionals was critical as was the experience of meeting and learning with other children through the camp experience. Attempts to simplify self-management techniques would appear to be a key priority as would a greater understanding of the self-beliefs young people have of their ability to influence and control their condition and its impact on their life. |
| Databáze: | OpenAIRE |
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