Articulating ‘free, prior and informed consent’ (FPIC) for engineered gene drives
Autor: | Dalton R. George, Jason A. Delborne, Todd Kuiken |
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Jazyk: | angličtina |
Rok vydání: | 2019 |
Předmět: |
0303 health sciences
Convention on Biological Diversity General Immunology and Microbiology Responsible Research and Innovation Community engagement Gene Drive Technology Special Feature 06 humanities and the arts General Medicine Engineered Gene 0603 philosophy ethics and religion General Biochemistry Genetics and Molecular Biology 03 medical and health sciences Free prior and informed consent Informed consent Political science Humans Engineering ethics 060301 applied ethics Public engagement General Agricultural and Biological Sciences Indigenous Peoples 030304 developmental biology General Environmental Science |
Zdroj: | Proc Biol Sci |
Popis: | Recent statements by United Nations bodies point to free, prior and informed consent (FPIC) as a potential requirement in the development of engineered gene drive applications. As a concept developed in the context of protecting Indigenous rights to self-determination in land development scenarios, FPIC would need to be extended to apply to the context of ecological editing. Without an explicit framework of application, FPIC could be interpreted as a narrowly framed process of community consultation focused on the social implications of technology, and award little formal or advisory power in decision-making to Indigenous peoples and local communities. In this paper, we argue for an articulation of FPIC that attends to issues of transparency, iterative community-scale consent, and shared power through co-development among Indigenous peoples, local communities, researchers and technology developers. In realizing a comprehensive FPIC process, researchers and developers have an opportunity to incorporate enhanced participation and social guidance mechanisms into the design, development and implementation of engineered gene drive applications. |
Databáze: | OpenAIRE |
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