Let's Talk about Inclusion: A Report on Patient Research Partner Involvement in the GRAPPA 2015 Annual Meeting
| Autor: | Andrew Parkinson, Maarten de Wit, Roland MacDonald, Willemina Campbell, Ana Maria Orbai, Alexis Ogdie, Laura C. Coates, Chris A. Lindsay, William Tillett, Niti Goel, Ingrid Steinkoenig, Anna R. Moverley, Jana James, Dafna D. Gladman, Denis O'Sullivan |
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| Přispěvatelé: | Ethics, Law & Medical humanities, EMGO - Quality of care |
| Rok vydání: | 2016 |
| Předmět: |
030203 arthritis & rheumatology
medicine.medical_specialty business.industry Immunology Arthritis Psoriatic Decision Making Alternative medicine medicine.disease 03 medical and health sciences Psoriatic arthritis 0302 clinical medicine Rheumatology Family medicine medicine Physical therapy Immunology and Allergy Humans Psoriasis 030212 general & internal medicine Patient participation Patient Participation business Inclusion (education) |
| Zdroj: | de Wit, M, Campbell, W, Coates, L C, Gladman, D D, James, J, Lindsay, C A, MacDonald, R, Moverley, A R, Ogdie, A, Orbai, A-M, O'Sullivan, D, Parkinson, A, Steinkoenig, I, Tillett, W & Goel, N 2016, ' Let's Talk about Inclusion: A Report on Patient Research Partner Involvement in the GRAPPA 2015 Annual Meeting ', Journal of Rheumatology, vol. 43, no. 5, pp. 970-973 . https://doi.org/10.3899/jrheum.160117 Journal of Rheumatology, 43(5), 970-973. Journal of Rheumatology |
| ISSN: | 0315-162X |
| Popis: | Members of the Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA) have worked since 2012 to include the patient perspective in their psoriatic arthritis (PsA) research as well as in their annual meetings. Herein, patient research partners (PRP) report the progress made in their experience at these GRAPPA meetings and discuss their perception of the challenges that remain in ensuring that patients have a voice in PsA outcome research. |
| Databáze: | OpenAIRE |
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