Haemophilia Experiences, Results and Opportunities (HERO study) in Brazil: Assessment of the psychosocial effects of haemophilia in patients and caregivers

Autor:	Margareth C. Ozelo, Claudia S. Lorenzato, Rafael B. Santos, Gabriel Z. Z. Fagundes
Rok vydání:	2019
Předmět:	Adult Employment Male medicine.medical_specialty Health Knowledge Attitudes Practice Adolescent Haemophilia A Friends Comorbidity 030204 cardiovascular system & hematology Haemophilia Hemophilia A 03 medical and health sciences Young Adult 0302 clinical medicine Surveys and Questionnaires medicine Humans Family Exercise Genetics (clinical) Health policy Depression (differential diagnoses) Aged Aged 80 and over Marital Status business.industry Chronic pain Social Support Hematology General Medicine Middle Aged medicine.disease Cross-Sectional Studies Caregivers Family medicine Quality of Life Anxiety Educational Status Observational study Female medicine.symptom business Psychosocial Brazil 030215 immunology
Zdroj:	Haemophilia : the official journal of the World Federation of Hemophilia. 25(4)
ISSN:	1365-2516
Popis:	INTRODUCTION The international Haemophilia Experiences, Results and Opportunities (HERO) study assessed the psychosocial aspects of life for people with haemophilia (PWH) and their caregivers in several countries. Brazil was not included in this initiative. AIM AND METHODS An observational, multicentre, cross-sectional study was performed involving PWH (moderate-to-severe haemophilia) and their caregivers, from November 2014 to July 2015. The primary objective was to quantify the extent of the primary psychosocial factors affecting PWH in their everyday life. Descriptive statistics and comparisons between Brazilian and global respondents are presented. RESULTS A total of 100 adult male PWH and 100 caregivers (responding on behalf of their oldest affected child aged
Databáze:	OpenAIRE
Externí odkaz:	https://explore.openaire.eu/search/publication?articleId=doi_dedup___::259da70f0a71f87ef3afff34072a9a89 https://pubmed.ncbi.nlm.nih.gov/31115094 Zobrazit plný text záznamu Plný text ve formátu PDF Plný text ve formátu HTML
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