Lessons Learned From a Randomized Controlled Trial of a Family-Based Intervention to Promote School Functioning for School-Age Children With Sickle Cell Disease
| Autor: | Marie J. Stuart, Lamia P. Barakat, Chavis A. Patterson, Kelsey Smith, Lauren C. Daniel, Yimei Li, Kim Smith-Whitley, Reem A. Tarazi, M. Renee Robinson |
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| Rok vydání: | 2015 |
| Předmět: |
Male
Intervention effect Anemia Sickle Cell Disease Education law.invention Quality of life Randomized controlled trial law Surveys and Questionnaires Intervention (counseling) Developmental and Educational Psychology Humans Learning Medicine Family Child Schools School age child business.industry Articles Achievement School functioning Caregivers Pediatrics Perinatology and Child Health Quality of Life Female Family based business Social Adjustment Clinical psychology |
| Zdroj: | Journal of Pediatric Psychology. 40:1085-1094 |
| ISSN: | 1465-735X 0146-8693 |
| DOI: | 10.1093/jpepsy/jsv063 |
| Popis: | Objective Tested a family-based group problem-solving intervention, "Families Taking Control," (FTC) to improve school functioning and health-related quality of life (HRQL) for children with sickle cell disease. Method Children and caregivers completed questionnaires assessing HRQL and school functioning and children completed performance-based measures of IQ and achievement at baseline and 6 months later. Families were randomized to the intervention (FTC, n = 42) or delayed intervention control (DIC, n = 41) group. FTC involved a full-day workshop followed by 3 booster calls. Results There were no differences between FTC completers (n = 24) and noncompleters (n = 18). FTC group (n = 24) and DIC group (n = 38) did not differ significantly on primary outcomes at follow-up: number of formal academic and disease-related accommodations, individualized education plan/504 service plan, school absences, school HRQL, or academic skills. Conclusions Although families found FTC to be acceptable, there were no intervention effects. Challenges of the trial and implications for future research are discussed. |
| Databáze: | OpenAIRE |
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