Australian Hospital-Based Parenting Support for Adults with Incurable End-Stage Cancer: Parent Perspectives
| Autor: | Alison Hocking, Lynette Joubert, Vera Steiner, Aron Shlonsky |
|---|---|
| Rok vydání: | 2020 |
| Předmět: |
Adult
Male Health (social science) Palliative care Sociology and Political Science Social Psychology Service delivery framework Context (language use) Interviews as Topic Young Adult Social support Nursing Neoplasms Health care Humans Terminally Ill Prospective Studies Young adult Qualitative Research Aged Parenting Social work business.industry Australia Social Support Middle Aged Hospitals Cross-Sectional Studies Female business Psychology Qualitative research |
| Zdroj: | Journal of Evidence-Based Social Work. 17:172-190 |
| ISSN: | 2640-8074 2640-8066 |
| DOI: | 10.1080/26408066.2019.1705957 |
| Popis: | Parenting support needs of patients diagnosed with incurable end-stage cancer (IESC) with young families are not addressed as part of routine hospital health care. Their support needs and experiences of hospital-based parenting support are largely unknown. The study aims to explore hospital-based parenting support delivery from patient and co-parent perspectives in context to their parenting experience and support needs. Exploratory, prospective, cross-sectional qualitative design. Semi-structured in-depth interviews with eight adult patients with IESC and four co-parents purposively recruited from a tertiary hospital in Melbourne, Australia. Findings were thematically analyzed. Parents desire support with challenging multidimensional parenting issues. Organization, health professionals (HP), and parental-based factors hinder and facilitate optimal service provision. Responsibility rests with HP to initiate parenting support. Interdisciplinary family-focused support offered throughout IESC health-care journey is key. Patient-centered family-focused support is warranted. Surmountable challenges lie with management and HPs to address barriers affecting optimal service delivery. |
| Databáze: | OpenAIRE |
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